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New Member

Date Joined Jun 2009
Total Posts : 15
   Posted 6/9/2009 2:37 AM (GMT -6)   
I had UC for eight years and had my entire large intestine removed. I now have had an ileostomy for 1 year and six months. I am currently working on losing enough weight so my surgeon will do stage two of my J pouch out of the 3 stages she wants to do. I still have to lose 70 more pounds before that happens. I have just found this board and this is the first real experience I have had talking to other people that are going or have gone through this. I have been told nothing of what can go wrong from having a J Pouch done and now I am just finding out that people are still having to use the bathroom 12 times a day or more! This surgery has been one hope i have been hanging onto, I know I am a strong enough person to live with the ileostomy pouch or a permanent pouch, but I am still considering the J Pouch. Now I am reading that people have a higher rate of colon cancer with a J pouch? I really don't know if I can live with UC like symptoms of having that urgency to use the bathroom from a J pouch and having biopsies to check for colon cancer every year. Currently my small intestine has adapted quite well to pulling out water and I probably use the bathroom 5-6 times a day max. After a J pouch is done is it possible to control the urgency issue of using the bathroom with diet and something like immodium? And what is involved in the biopsy process to see if you have colon cancer every year once the J pouch is done and how painful is it? No matter what I read I will probably still toss the dice and get the surgery for the J pouch but I want to be informed as possible before I choose. Any other J pouch issues I should be aware of please please let me know. thank you everyone for being such great people.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 6/9/2009 8:15 AM (GMT -6)   
I recommend you visit That site has over 6,000 members who have had the jpouch and you can get all your questions answered there.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 6/9/2009 1:39 PM (GMT -6)   
you can't get colon cancer if you have a j pouch.
You don't have a colon.
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

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