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Jo-net
New Member


Date Joined Jun 2009
Total Posts : 1
   Posted 6/12/2009 12:03 AM (GMT -7)   
Hi everyone I'm a new member and need some advice or info on what to expect in the near future. I had a  ileostomy  (take down) March 2009 since that time I've have had pain where the stoma site was and diarrha, to the point my bottom gets raw so I use Prep H wipes. Drs advice to me was eat lots of fiber stating I should bulk up. The Dr has even given me Lactinex, and Cholestyramine to help me bulk up but no relief. When can I expect this to pass  

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/12/2009 9:35 AM (GMT -7)   
Welcome, Jo! :-) I was just reading the thread called "UC Free - Are you up for questions?" He just had the takedown surgery and recommends Calmoseptine Ointment and zinc oxide cream. Wiping with Vaseline on the toilet paper helps, too.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5695
   Posted 6/12/2009 5:47 PM (GMT -7)   

Cecelia has given you some great recommendations for butt creams.  Have you tried taking metamucil?  Most people like the wafers; they're great for binding foods and eliminating the burn.  The powder doesn't work as well but if you try that use half the amount of water recommended.  What are you eating?  Often in the early days of recovery some foods are troublesome.  Until your system adjusts you might want to eliminate any thing with sugar in it (including fruit juice) and avoid tomato products.  Are you taking imodium or lomotil to slow your transit time?  Are you keeping a food diary to measure transit times and effect of foods on your system?

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 6/12/2009 8:20 PM (GMT -7)   
Cecelia/Sue,

Was I too graphic in my descriptions? :-)

Jo,

I find that the creams help a LOT. However, bulking up is definitely the way to go. I'm waiting a couple of weeks to introduce the metamucil and immodium (personal choice), or as long as I can, so that my body can try to adjust to the JPouch by itself. Bananas are helping me slow things down a lot too .... some have said marshmellows and apple sauce is an alternative and works just as well.

Hope you get better soon ...
--
Diagnosed with Ulcerative Colitis - 1998
Failed, Azathioprene, Homeopathic, Ayurvedic, Remicade, Humira treatment
Steroid dependent - 2009

Temp ileostomy - April 7th 2009 (4 days)
Dehydration - April 24th 2009 (2 days)
Fluid around J Pouch and high fever - May 11th 2009 (4 days)
Takedown surgery - June 3rd 2009

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