Do you ever feel like an experienced patient?

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Date Joined Jul 2007
Total Posts : 2765
   Posted 6/18/2009 9:02 AM (GMT -6)   
Last week, I noticed some psoriasis on my scalp. I knew exactly what it was, because my mom has it. I googled treatment for it, and found a psoriasis site that recommended a topical ointment called Taclonex. I just happened to have a small sample of it, so I put some on, and it cleared it up. 
Since I only had that one sample, I made an appointment to see my dermatologist to get some more. When I got there, I told him that I had scalp psoriasis and needed some Taclonex. He looked at my scalp and agreed, so he gave me a script for it. Then, he smiled and said, "That was easy!" :-)
Now, I don't recommend self-diagnosing and treating, but do you ever feel like an experienced patient? After everything we've been through, we know our bodies best and what works for us. I'm sure we all have stories where we told our doctors what was wrong and what we needed, and they agreed.

Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 6/18/2009 10:18 AM (GMT -6)   
yes i do, lol
My old family dr before they moved away, i could just go to her and say, i need such and such and she would say, yep you do, and write it for me, lol.

New Member

Date Joined Jun 2009
Total Posts : 6
   Posted 6/18/2009 2:11 PM (GMT -6)   
I totally agree!

It's bad when friends call and ask for medical advice!! If I only went to medical school........Just think of all the money I could be making!

Regular Member

Date Joined Aug 2008
Total Posts : 470
   Posted 6/18/2009 4:24 PM (GMT -6)   


I know exactly what you mean.  It's pretty bad when your co-workers ask you what to do before they ask their own dr; but then again when you look at all of our signatures and all we have been through we can pretty much diagnose a lot of things especially when some of us have been to 5 or more of the same kind of specialist trying to find out what is wrong with us.

tls-my daughters always say to me why didn't you go to medical school instead of being a teacher; do you know how much money we could have?  I always tell them that I may be teaching a future dr. smilewinkgrin

At least all of this experience has helped us help each other on this site.  It's so wonderful to have such a great connection with so many people!

Take care,


spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
Am now down from 17 meds a day to 8 and VERY healthy:)
There's always hope and things will get better :)

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 6/18/2009 6:22 PM (GMT -6)   
Something alot of people dont know, is that when you pop out a baby you automatically become a dr!!!
Its amazing how many things you just "know" about how to fix something or cure something once you become a mommy, lol.

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 6/18/2009 9:41 PM (GMT -6)   
I married into a family of teachers and like the way you think!
Very true and so funny!
I can relate. Had dinner with a friend at Chili's tonight, and we spent the first hour going over her health problems and trying to diagnose her. We came up with fibromyalgia, so she's going to see a rheumatologist next week.  
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 6/18/2009 9:58 PM (GMT -6)   
I'm always self-diagnosing!
sometimes it gets me in trouble. (like when I had u/c and fiddled with my asacol and caused a flare-but then again, that was YEARS ago...I'm much more experienced now. LOL).

When you've been through as much as we have, you have to learn to be your own advocate and let's face it, you have to baby sit the Dr.'s and nurses too. (like ohcountrybear in another post) So we HAVE to know our stuff.
Who DIDN'T do as much research as possible when you were first dx or decided to have surgery. Plus, we read everyone else's experiences and learn from them too.

When I was pregnant, due to my profession, I was exposed to a disease called leptospirosis. It can cause spontaneous miscarriage. I called my OB's office and had to 'school' them about it. I told them what I needed and why. Then when I went to see the OB (not my reg. one) he was asking ME all the ?'s about it.
Geez. What line of work are you in Dr.......!

My mom recently has been having major tummy issues and blood in her stool, and asked me what she should do. I told her to do to the Dr. and have a colonoscopy and upper endoscopy. She told the Dr. that and the Dr. said "Don't they all think that...." Then after the exam, the Dr. ordered the tests! told u so doc. tongue
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

Post Edited (Chasblah) : 6/18/2009 9:05:46 PM (GMT-6)

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 6/18/2009 10:26 PM (GMT -6)   
Hmmm, it's bad when my friends call me Dr. Peggy!!! At least we can guide a lot of friends in the right direction.

Cece - Psoriasis is a hard one to clear up - good for you!

My dr. is a gem at listening to me anymore. Not when I first started seeing him many years ago tho. He did not do any of my surgeries and had no clue HOW much I knew about my own body at that point. He's come around nicely! Seriously, I so appreciate the fact that he listens and asks me questions too. It's rare. THough I would like to have the pay to go with the knowledge. When I talk to his nurse, she always asks me if there is anything I 'need', and just to call her if I do.

It does get old dealing with illnesses and trying to diagnose the symptoms and figure out a cure for the situation. But some of us must be meant to do this...I think I am wandering off subject here. Sorry.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Regular Member

Date Joined Apr 2005
Total Posts : 269
   Posted 6/18/2009 11:51 PM (GMT -6)   
I know the feeling. I diagnosed myself with colitis. I could've safed the insurance co a lot of money if they would've just done the colonoscopy instead of the other barrage of tests that showed nothing, just like I told them they would! I keep telling myself I should go back and be a PA or something.... I'll be a teaher for a little while anyways. We will see! I'm glad I'm not the only one.
I am also very happy to be in presence of all these other smart "doctors"! We are a lucky bunch!

25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006

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