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jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 6/19/2009 9:59 AM (GMT -7)   
Hi guys-

I had been doing so well until about a month ago. I developed a rash around the stoma and went to the wound nurse who gave me prescription cream. Well, I went out of town and then all hell broke loose. My rash got worse--- and caused the wafer to fall apart. I had two leaks and then began to have to change bag everyday.

I am supposed to have step 2 next Tues. I am now taking Diflucan and the doctor said that if the fungal rash doesn't clear up by Monday, he is postponing the surgery... Argh!

The nurses have been great - We changed products- no more paste or skin prep -- now i am using Eakin seals and an absorbent pad that doesn't stick to the skin. I have to tape the pad down.... What a mess!


Any ideas or suggestions?? I am so frustrated.
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/19/2009 10:55 AM (GMT -7)   
Have you tried Nystatin yet? It is a prescription anti-fungal powder that works fast. If you haven't tried it yet, ask your doctor to call some in today, so you can start using it. I hope it clears it up!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 6/19/2009 1:46 PM (GMT -7)   
I asked about Nystatin and they said that at the cream is about as good as the Nystatin....
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 6/22/2009 5:24 PM (GMT -7)   
Danicing for joy for you !!!!
Just heard you're going in tomorrow for step 2 of the surgery !!!!!

Prayers, thoughts and bowel movements be with you!!
--
Diagnosed with Ulcerative Colitis - 1998
Failed, Azathioprene, Homeopathic, Ayurvedic, Remicade, Humira treatment
Steroid dependent - 2009

Temp ileostomy - April 7th 2009 (4 days)
Dehydration - April 24th 2009 (2 days)
Fluid around J Pouch and high fever - May 11th 2009 (4 days)
Takedown surgery - June 3rd 2009

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