3 months after total colectomy for colon inertia and so discouraged...

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Janiepain
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Date Joined Jan 2007
Total Posts : 662
   Posted 6/21/2009 4:03 PM (GMT -7)   
It's been 3 months since surgery.  The first 6-8 weeks, I was going to the bathroom 20x a day or more, several times after every meal.  I had butt burn and kept wishing I could slow down a little.  Be careful what you wish for!!!!  I started taking 1/2 lomotil before lunch and then metamucil at bedtime and the next 2 weeks were wonderful, I went 6-8 times a day and felt really well.  The last two weeks have been not so good....one day I will barely go at all and feel totally stopped up, the next day I might be better.  I stopped taking the lomotil, and thought maybe I was stopped up because I was on antibiotics, but I've been off for a week, and I'm still having problems.   This weekend has been bad.  I couldn't go Friday at all, drank prune juice Friday night and finally went during the night.  Since then I've been stopped up again.  I know I have pelvic floor dysfunction, and I feel like I need to go and can't.  I've used a couple suppositories this morning and went just a little, but I still feel full and bloated....just like before surgery.  I drank some prune juice a little while ago and hopefully it will work.
 
I know the problems Lizzie and some others have had and it's so discouraging.  For a couple weeks, things were going so well....how can it just change like that?  I haven't altered my diet; still eating basiscally the same things.  I'll know later if the prune juice works, and if it does, I'll just continue to drink it daily (yuck).  However, if it doesn't work, then what?  I started taking a stool softener today, but haven't seen any results from that yet either.  Any suggestions?  This is so so discouraging, as I know some of you know.
 
Janie

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 6/22/2009 6:13 AM (GMT -7)   
Oh Janie
i am so sorry u are going through this.  When do u next get a checkup?  I hope you can get through this and be ok again - i dont know why this shld happen . If the last resort is a bag Janie it is not as bad as it seems - if my reversal doesnt go smooth then i will have a bag for life but anything is better than suffering.  i do hope you can get some help and as you say lizzie and hoday know about these things more than me. xx
Karen 47 yrs
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
 
15 JANUARY 2009: scheduled for T/C
12 FEBRUARY 2009 - Re-scheduled T/C- (postponed as the Professor is away)
10 MARCH 2009 - T/C HORRAY FOR A CANCELLATION!
Loop Ileostomy - Due for reversal around June 2009
 


Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 6/22/2009 7:15 AM (GMT -7)   
Karen,
 
I don't see my surgeon for another month.  I just saw him about 2 weeks ago, and I was going great....and told him so.  Everything changed a couple days later.  I thought it was because I was taking an antibiotic for an urinary tract infection,and a couple days after I stopped taking it, I was going ok again...but only for a couple days. 
 
Last night after I drank the prune juice I went a little, but mostly liquid. I didn't go to work this morning because I feel so terrible, but my husband is on his way to Dunkin Donuts to get me a Coolata, which is a cold coffee drink.  For some reason, everytime I drink one of those, I go all day.  I'm hoping that still works.  At least to clean me out enough to feel good.
 
You know, my GI was totally against me having this surgery because he said in his experience people who have a colectomy usually end up having a bag....at that time I felt so terrible that I told him I wouldn't care if I did.  I have no idea what that is like, but I know what this constipation is like, and now because there's no colon, if I don't go everyday I feel horrible.  Before surgery I used to be able to go for 4 or 5 days without having a BM and then I'd take a laxative, but now after a day of normal eating, if I don't go I feel pretty lousy.
 
The saddest part for me is that I had that small window of a couple of weeks where I felt great....went a few times a day and it felt wonderful.  I'll see what happens today and if the Coolata doesn't work, I'll be calling the Dr. for advice.  I don't want to take any laxatives if I can help it...does anyone have any suggestions??
 
Thanks, Janie
 
 

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 6/22/2009 7:36 AM (GMT -7)   
Janie my surgeon said that to me also - but only for the reason of incontinence.  i do hope the drink helps - if it does the trick then take it regularly.
Karen 47 yrs
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
 
15 JANUARY 2009: scheduled for T/C
12 FEBRUARY 2009 - Re-scheduled T/C- (postponed as the Professor is away)
10 MARCH 2009 - T/C HORRAY FOR A CANCELLATION!
Loop Ileostomy - Due for reversal around June 2009
 


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 6/22/2009 8:01 AM (GMT -7)   

Oh janie dear.....

I do not even know what to say considering my status. I started out really well as well....going all the time and then after a while things just tapered and stopped. They started me with laxatives again and biofeedback, then botox and then I got my blockage before anything else vould be done. Hopfeully this is just a bump in the road and all will turn around for you. Take some colace or a stoll softener twoce a day and see if that helps. I know this is awful....I too had a 3 month window of feeling great and then the pelvic floor just failed. I pray and hope this is not the case with you and for right now try and not get too discouraged. I had a rough weekend as well. Was in the ER last night. Please let me know if I can do anything for you.....in my prayers sweetie.

Lizzie


Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24
Cleveland Clinic in six weeks for further testing....awaiting approval.
 
"The Greatest Healing Therapy is Friendship and Love"


Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 6/22/2009 3:54 PM (GMT -7)   
Karen and Lizzie,
Thanks so much for your responses. It is just so discouraging, and I know that you know that better than anyone here Lizzie. Anyway, I drank the coolata, went some, took a colace and then drank grape juice and I've got a sore butt again, but I welcome it. I have no idea what's going on, but I'm going to take the colace and grape juice tomorrow morning and see what happens. I'm also not going to take metamucil tonight. I was only taking a teaspoon rather than tablespoon, and the first few times I took it, it was great....I'd get up in the morning and go quite a lot and then I was good for a few hours. Lately though it feels like I have to go but can't get it out. Sorry to be so graphic!

Lizzie, I read the other thread about your problems; I can't believe how hard this is for you every step of the way. I'm sure the reason you feel so anxious and depressed about the ileostomy is because everything is so difficult for you; it seems like if it can go bad, it has for you. It just doesn't seem fair. I truly pray that one day soon you'll start having good days and can get on with your life.

Again, this forum is amazing. I don't know what I'd do without it!

Janie
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