New ileostomy and needing help

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New Member

Date Joined Jun 2009
Total Posts : 2
   Posted 6/21/2009 6:22 PM (GMT -7)   
Hi everyone! 
I'm here for my mother Wanda.  My name is Melinda.  Mom had her ileostomy June 3 2009.  Shock to us all.  She had a very healthy colon April 1st 2009 during her colonoscopy.  She started having severe abdominal cramps and we watched her colon become ischemic within a few weeks.  Drs. were not expecting ileostomy.  They told us 1/3 of her colon was to be removed.  We are still in shock from everything.  Mom has been home from the hospital 2 weeks now and we are having lots of problems. 
1st- her stoma retracts everytime she sits up or stands.  We can't seem to find any appliance or paste etc. that will give her more than a few hours before leaking again.  We've be to the ET nurse almost daily since bringing her home.  Any suggestions?
2nd- Mom is still very weak.  How long till she begins to feel better?  She is also very frustrated with this whole thing and at times becomes super depressed.  My 2 teenage daughters and I are taking care of her.  She is 61yrs and lives alone (not since coming home- we're staying with her) she has other medical problems, and wants to die at times.  I want to help her, but everything I've tried seems to fail.  Any help would be greatly appreciasted.

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 6/21/2009 6:29 PM (GMT -7)   
have you tried using the heat on the wafer when you put it on? Maybe try putting the bag on with her in a different position than usual.
Also alot of people have alot of luck with eakin seals, and the belts, although i dont know anything about them.

As for feeling weak, thats to be understood it will take her a while, it takes about 6 months to compelty get your energy back from surgery, but at least a month until you can start going again. And her being depressed about it, which is totally understandable, is probably making her feel worse physically.

I really hope you guys can get this figured out.

New Member

Date Joined Jun 2009
Total Posts : 2
   Posted 6/21/2009 7:11 PM (GMT -7)   

Thank you for the advice!  We will try the heat.  Her ET has not mentioned products to us other than Hollister.  We've tried 1 piece units and different types of 2 piece units.  I'll mention the eakin. 


Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 6/21/2009 8:40 PM (GMT -7)   
i guess i could have told you what i meant by heat!
just use the hair dryer around the wafer for a few seconds and then press down as you are doing it

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 6/21/2009 8:48 PM (GMT -7)   
What is being used to clean her skin around the stoma/under the wafer area?   It could be something as easy as changing the cleaning product or method...  We can give you some hints about this if heating the wafer when you apply it doesn't work.
The eakin seals are great!  I've had my ileostomy for almost 25 years now.  Eakin Seals helped me out when I was having some issues a while ago and I just kept using them since.  I get 7 days wear time... have to mark the calender if I go off schedule, like planning a long weekend away from home and changing it a day or so early so I don't have to while I am away.  Highly recommend these.
Is your mom mobile?  Can you get her up to walk some every day?  Outside to get some sunlight?  She should be moving about anyway.  Any activity would probably be helpful.
Hope things look up for her.  Let us know if we can help.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Regular Member

Date Joined Jan 2009
Total Posts : 125
   Posted 6/22/2009 2:53 AM (GMT -7)   
I would try a convex appliance with a belt, that's what worked for me. Along with an eakin's seal. Hollister works for some people, but not every one. I would look for a convex appliance.

Forum Moderator

Date Joined Feb 2003
Total Posts : 1251
   Posted 6/22/2009 4:09 AM (GMT -7)   
She doesn't have to stick with Hollister. Go to other manufacturer's websites and request free samples:

are the main ones.

I also agree, if her stoma is retracting below skin level, try an appliance with convexity. It's designed to push the skin in around her stoma, making it stand out more.

Good luck.


I'm not a complete idiot - some parts of me are missing!

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