I was wondering if anyone can help a 15 yr old getting an illieostomy or if ne1 has an A.C.E thanx

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New Member

Date Joined Sep 2004
Total Posts : 1
   Posted 9/21/2004 6:53 AM (GMT -7)   
Hey I was just wondering if anyone can help?
I have just been told that I am getting an illieostomy, I have already had a colostomy but had it reversed not long ago. they have told me I have got to get the illieostomy because my bowel has stopped working altogether. I was just wondering if any of you will be able to tell me what it is like to have an illieostomy is it the same as having a colostomy? I am also scared of going to school with it as I have just turned 15 does it make noises like the colostomy? Thankyou to any one who writes back love Amanda x x x x x
And does nebody on this have an A.C.E if so can you write to me to tell me if yours works thankyou.

New Member

Date Joined Jun 2004
Total Posts : 5
   Posted 9/21/2004 8:05 AM (GMT -7)   
An ileo-ostomy produces semi-liquid BM's continuously. So, you would have to empty the baggy more often. The liquids are corrosive and can produce skin problems and leakage. So, stay away from white pants and skirts. It's not so noisy, because there is hardly any gas production in the small intestine.

At your age I can understand the insecurity you must go through. So, how about spending a few hours at school dedicating to the problems of people with IBD and ostomies?
I am sure that most of your fellow students would really like to know more about this subject, and it would contribute to a better understanding and it would make you feel more secure.

What is the nature of your problem? UC, Crohn, or something else?

Best wishes, Richard

Regular Member

Date Joined Sep 2004
Total Posts : 38
   Posted 9/23/2004 5:33 PM (GMT -7)   
Hello Mandyjr hi i have had both i didnt think either was diffent from each other yes ileostomy puts out more and if you take care of your ileostomy you shouldnt have any problem i went to school when i had both mostly with the ileostomy i had great friends and they always told me they couldnt tell if it was on my side but you shouldnt wear white clothes just in case and alway pack ex stuff with ya ..... i am glad i didnt have any probles at school but a lot of them at home when they first had it done good luck about going to school and hope everything turns out great

Regular Member

Date Joined Oct 2004
Total Posts : 58
   Posted 10/11/2004 5:31 PM (GMT -7)   
Hi Amanda,
I had ileostomy surgery when I was 18, and it was a tough adjustment, but made life so much easier in a lot of ways. If you take care of it in the right way your skin will be fine. The "Active Life" bags from Convatec are the best, really thin and very strong. I can wear anything, even a bikini with a hi-cut waist. It can make noises, and it sometimes depends on what you eat, but you'll figure out what works for your body. I've never had a colostomy, but have had the ileostomy for a really long time now, and if you're creative you can get away with almost everything. Make sure you carry an extra bag, paste, a plastic bag and tissues with you in case you need an emergency change. Good luck with the surgery, I'm sure you'll do really well

New Member

Date Joined Nov 2004
Total Posts : 1
   Posted 11/28/2004 2:36 AM (GMT -7)   
I have had an illiostomy since april 04 i am 50 now and after all the confusion and depression (zoloft for a few months) an undersanding family i find that it is not that grim, getting used to the ileostomy and the art of living with it will come with time, a name helps (Mount Edna is my pet name).
Good luck and best wishes

New Member

Date Joined Jan 2005
Total Posts : 1
   Posted 1/22/2005 9:10 PM (GMT -7)   
Hi Amanda,
My name is Alison. i'm 16 years old and live in michigan. i've had an ileostomy since i was born. i was born with a conjoined twin and yeah its a long story so i won't go into it. i just want to let you know that i've never had problems with my ostomy and i can't even imagine how it must feel for you to try and adjust to it. its not to bad i've gone to school with it just fine all my life. you school really think about going to the uoa youth rally this summer in boulder colorado. i went last summer for the first time and you get to meet somany other teens with ostomys that share the same problems as you and me. it really a great experience and you meet life long friends and its so much fun!. if you have any questions about your ostomy feel free to e-mail me i'd be happy to help you out. i know your going through a difficult time. my e-mail is ali2angel@yahoo.com . let me know how your doing :-)
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