Yay! I'm actually very excited for him!!! You know, if the pain from the surgery starts to consume him simply ask if he can distinguish the surgery pain from the CD pain. I had to do that frequently and just feeling the UC gone made me cry. It still makes me teary. Not a day goes by that I do not appreciate having that pain gone. It's amazing!!! So, I am very excited for your husband b/c he's taking control of a very controlling disease and getting his life back!!! Whoo-hoo!!!!!
I have to second the suggestions regarding the plenty of rest and plenty of fluids. I struggled drinking enough water, but have found that by adding flavor to my water keeps me motivated to drink over 100oz a day. Silly isn't it? We buy tons of the Crystal Light water bottle flavors. I like the wild strawberry b/c there's caffeine. However, I add just one package to a super large cup that holds up to 44oz. Normally I just fill it to 35-40oz, but I drink 4-5 of these cups a day. I also use a straw. I know they say a straw adds air, but I don't care. I'm getting my liquid. The cups I use are the 44oz clear plastic ones from QuikTrip. Then the straws I use actually came from my hospital stays and the cups they send home. : ) The cups got tossed (I don't necessarily want the visual reminder of my experiences) but the straws are awesome!
When it comes to the foods he can eat, really the only limitations would be veggies like broc/caulifl., corn, green pepper, and things that may have a firmness to them...like stir fry veggies. I would advise him to get used to his ileo and try the veggies after a couple months. It seems like many of use are getting blockages right now b/c we can't help ourself with the corn. Darn summer months and scrumptious fresh veggies!!! My deal has actually been the fresh green peppers.
Also, the more water he drinks the more liquidy his output will be. I personally feel this may be a better situation while he's getting used to emptying and all that jazz. I would also suggest a two-piece appliance for a month or two until he's got the hang of have the ileo. I can't do two-piece anymore b/c I have an 18 month old son who climbs up me all the time, and I'm just way to active...it'd be my luck that the darn bag goes flying off b/c I'm just too rough.
Uhm...really, this is going to be a life changing experience for everyone around you. Your husband will be faced with yet another identity issue, so please be patient with him and offer your complete support. I also think that if he were to get on here and ask questions it may help with his experiences after the surgery.
: ) Robin
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open." -Unknown