subtotal colectomy feb 2009

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bunker
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 6/22/2009 11:14 PM (GMT -7)   
I thought this would improve my life from colonic inertia. Now I am on the other side of the spectrum. I had my surgery in feb. It is now june and I still have pain on my left side and diarrhea 10-20 times a day.Tried many different meds with little success. Was hospitilized once while on vacation for 2 days with iv antibiotics. Have had ct scans,small bowel series, 2 scopesand they find nothing that is causing this. My diet is very limitted to 1 meal a day because I can't stand it anymore. I still have about 6" of rectum left but they can't seem to get to the connection. I am going to boston for a second opinion as this is not a life. I was better off with the painful constipation. At least I didn't soil my pants or have accidents in my sleep.I don't think I will live very long like this as I am loseing so much weight. Has this happened to anyone else and if so what did you do. I am so desperate I don't know what to do anymore. Please help I am open to any suggestions. Thanks judy

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 6/23/2009 4:41 AM (GMT -7)   

Hi Judy and welcome,

So sorry that you are having such a difficult time.  I had a subtotal last July and have about 2 in. of my colon left; it took my body 9 mo. to regulate to 2-3 bms a day and I have to continue to follow a low residue diet or I will have severe diarrhea.  My GI had told me it can take your body up to a year to adjust to the changes. 

Have you been on any antibiotics?  There is an intestinal colitis that you can get called c difficile that causes severe diarrhea and abdominal pain.  People without a colon have to be careful with this. I currently have this infection and was hospitalized due to the diarrhea, dehydration and pain, I lost 16 lbs in 2 weeks because of it.  There is a post "need bulking foods" that I put up that many people gave great suggestions when I couldn't keep anything in my system for longer than 15 minutes.  If you go to that post, perhaps you might find some things there that will help you also.  You really need to try to eat more than once a day because you aren't getting enough nutrition especially if you aren't drinking fluids.

After my surgery I too had pain but mine was on the right side my dr said it was where he attached the colon to the small intestine and it would take a long time to heal; he had me put heat on it which I did and it helped a lot.  You should talk to your dr about it though to be on the safe side.

I do hope that things get better for you.  This was the best thing that ever happened to me even with the setback of the c diff. and I really want others to have the success that I have had.

We are all here for you and I will keep you in my prayers,

Judy


 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


bunker
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 6/23/2009 7:58 AM (GMT -7)   
judy..thanks so much for replying so quickly..you sound like me..I did have an infection which I was hospitilized for and was on antibiotics for over 2mts. They just started me on a new drug called lotronex. This is at least helping the diarrhea but not the pain on the left side or the rectal spasams. I also had many surgerys--hysterectomy-overiesremoved-gallblader removed with lots of adhesions-carpel tunnel-left and right breast mastectomy breast cancer with silicone reconstruction implants and of course subtotal colectomy. they see a narrowing at the connection which may need to be stretch up the road..thanks for the info on need bulking foods..I will definately try looking this up if I can figure my way around this sight..This is new to me..thanks again judy

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 6/23/2009 8:36 AM (GMT -7)   

Judy,

Glad to be of some help.  Just go to the bottom of the page and click on the number of the next page and scroll down on the topics until you see the "need bulking foods".

Also, you might really want to contact your GI dr for a culture if you were on antibiotics for that long, especially if you have the much diarrhea.

I wish you the best,

Judy


 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)

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