I'm SO ready for surgery!

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flchurchlady Veteran Member Date Joined Jul 2007 Total Posts : 2765	Posted 6/23/2009 6:39 PM (GMT -6)
	I look forward to getting this high output ileostomy reversed next week! My surgery is scheduled for Wednesday, July 1. I've now lost 40 pounds in 2 months. Everything flies right through me, and I'm getting pretty tired of emptying a full pouch of liquid every hour or so. It will be so nice to go back to my other ileostomy, which is located at the end of my small intestine. I would only empty it a few times a day and didn't have to have a big bag of IV fluids every night just to stay hydrated. Thanks for letting me vent. I'll have my computer with me in the hospital and will keep in touch. :) Cecilia Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06. Disease-free, medicine-free, and very thankful to be healthy again. Back to Top

Equestrian Mom Veteran Member Date Joined Mar 2008 Total Posts : 3115	Posted 6/23/2009 9:01 PM (GMT -6)
	Cecilia! I'll be thinking of you a week from tomorrow!!! Please keep us posted...I know I won't be the only one worrying!! Back to Top

finallyfree Regular Member Date Joined Aug 2008 Total Posts : 470	Posted 6/23/2009 9:30 PM (GMT -6)
	Cecilia, I hope that your surgery goes well and you will have a quick recovery. I will keep you in my prayers. Judy Judy spleen/appendix/gall bladder removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08- Am now down from 17 meds a day to 8 and VERY healthy:) There's always hope and things will get better :) Back to Top

summerstorm Veteran Member Date Joined Aug 2006 Total Posts : 6571	Posted 6/23/2009 11:01 PM (GMT -6)
	yay for surgery! Back to Top

flchurchlady Veteran Member Date Joined Jul 2007 Total Posts : 2765	Posted 6/24/2009 4:04 AM (GMT -6)
	Thanks you guys! I appreciate your prayers and support. I have a really good surgeon who I trust, so I'm not going to worry. I figure I can have either fear or faith, but not both, so I choose faith! :) Cecilia Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06. Disease-free, medicine-free, and very thankful to be healthy again. Back to Top

peggy113 Veteran Member Date Joined Aug 2007 Total Posts : 1998	Posted 6/24/2009 7:53 AM (GMT -6)
	Cece, I am so glad that you are all set for surgery..but esp that you trust your surgeon. That's a hard change to make, but in your case, I believe it is the right decision. Hey, you know, you can call me anytime day or night if you need/want to chat. Say goodbye to that IV bag, and hello to life as it was prior to surgery. I will certainly be thinking of you. Please let me know or have DH let me know how things go. Peggy Diagnosed with CD in 1979, many resections and meds Perm Ileostomy July 1984 at Cleveland Clinic Disease free since surgery Back to Top

2b ColonFree Veteran Member Date Joined Nov 2008 Total Posts : 2603	Posted 6/24/2009 1:38 PM (GMT -6)
	good luck Cecilia! i will keep you in my prayers. bye bye bagie! Hodaya 06/05/2007 - STARR procedure colonic inertia w/ pelvic floor dysfunction Back to Top

Liza D Regular Member Date Joined Apr 2009 Total Posts : 166	Posted 6/24/2009 1:41 PM (GMT -6)
	Good Luck! :) UC (Pancolitis... 90%!) December 2001 Arthritis (2003) Upper GI Ulcer (2006) Osteopenia (2008) Depression/Anxiety (2002) J-Pouch May 2009 Meds just stopped working so I took the problem out! No more colon and all kinds of excitement! Back to Top

ohcountrybear Regular Member Date Joined Mar 2009 Total Posts : 192	Posted 6/24/2009 2:02 PM (GMT -6)
	Good luck.... my prayers and thoughts are with you Back to Top

flchurchlady Veteran Member Date Joined Jul 2007 Total Posts : 2765	Posted 6/24/2009 2:36 PM (GMT -6)
	Thanks everyone for your prayers and support! It's great to have friends who have been through it and understand. Cecilia Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06. Disease-free, medicine-free, and very thankful to be healthy again. Back to Top

Pibbin Regular Member Date Joined Apr 2008 Total Posts : 163	Posted 6/24/2009 4:26 PM (GMT -6)
	You have such a great, inspiring attitude! Wishing you good luck. Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07 Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira 10/10/08 colon removed, temporary ileostomy 11/10/08 FINALLY off prednisone after 18 months 2nd of 3 surgeries planned for '09 to form j-pouch Back to Top

XtremeMisery Veteran Member Date Joined Sep 2007 Total Posts : 687	Posted 6/24/2009 6:51 PM (GMT -6)
	CeCe- Good luck and you are in my prayers for a safe and quick recovery. I hope that yuou can get some of your nutrition back....40 lbs....holy cow....prayers your way. Lizzie Chronic Lifetime Constipation, Dx IBS-C for 7 yrs Diagnosed Colonic Inertia-Oct 2007 Total Colectomy with ileorectal anastamosis- Jan 28, 2008 Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains Four abdominal abscesses- Feb 2008 Diagnosed with small bowel Fistula- March 6 2008 Drains removed- End of March 2008 Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13 Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24 Cleveland Clinic in six weeks for further testing....awaiting approval. "The Greatest Healing Therapy is Friendship and Love" Back to Top

flchurchlady Veteran Member Date Joined Jul 2007 Total Posts : 2765	Posted 6/25/2009 2:48 AM (GMT -6)
	Thanks, Lizzie! I appreciate your prayers and concern. Once I have this high output ileostomy reversed and go back to my original one (yes, I currently have two), I will be absorbing more nutrients again. Cecilia Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06. Disease-free, medicine-free, and very thankful to be healthy again. Back to Top

Chasblah Veteran Member Date Joined Feb 2007 Total Posts : 788	Posted 6/26/2009 10:07 PM (GMT -6)
	Good Luck Cecilia!! I hope everything goes smooothly for you! I 'll keep you in my prayers. Chassity 28 yrs. old. married with one beautiful daughter (born 11/20/07) -diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation) coumadin, prenatal vit. (temporary ileostomy....maybe) "Things turn out the best for those who make the best of the way things turn out." Back to Top

flchurchlady Veteran Member Date Joined Jul 2007 Total Posts : 2765	Posted 6/30/2009 5:20 PM (GMT -6)
	Well, tomorrow's the day! I go in at 6 a.m. for surgery at 7 a.m. Thanks again for your prayers. I'll be in touch soon! :) Cecilia Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06. Disease-free, medicine-free, and very thankful to be healthy again. Back to Top

Equestrian Mom Veteran Member Date Joined Mar 2008 Total Posts : 3115	Posted 6/30/2009 5:51 PM (GMT -6)
	YAY for reversal day! I'll be thinking about you Back to Top

finallyfree Regular Member Date Joined Aug 2008 Total Posts : 470	Posted 7/1/2009 4:11 PM (GMT -6)
	Cecelia, You're most likely done with your surgery by now; I pray that it went well and that you are not in too much pain. I hope that you will be feeling well soon and are able to come home. Please let us know how you are doing. Peace and prayers, Judy Judy spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile Am now down from 17 meds a day to 8 and VERY healthy:) There's always hope and things will get better :) Back to Top

flchurchlady Veteran Member Date Joined Jul 2007 Total Posts : 2765	Posted 7/1/2009 5:45 PM (GMT -6)
	I'm happy to report that the surgery went really well! I have a pain pump, so I'm feeling very little pain, and get sleepy often. I'll touch base again tomorrow. Cecilia Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06. Disease-free, medicine-free, and very thankful to be healthy again. Back to Top

summerstorm Veteran Member Date Joined Aug 2006 Total Posts : 6571	Posted 7/1/2009 6:36 PM (GMT -6)
	yay! Back to Top

Equestrian Mom Veteran Member Date Joined Mar 2008 Total Posts : 3115	Posted 7/1/2009 6:43 PM (GMT -6)
	I second summerstorm's YAY Back to Top

Chasblah Veteran Member Date Joined Feb 2007 Total Posts : 788	Posted 7/4/2009 12:00 AM (GMT -6)
	can I third that YAY...? YAY! and wish you a speedy recovery. Chassity 28 yrs. old. married with one beautiful daughter (born 11/20/07) -diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation) coumadin, prenatal vit. (temporary ileostomy....maybe) "Things turn out the best for those who make the best of the way things turn out." Back to Top

flchurchlady Veteran Member Date Joined Jul 2007 Total Posts : 2765	Posted 7/4/2009 5:55 PM (GMT -6)
	Thanks, you guys! I've had a very fast recovery and get to go home tomorrow!! I'm so happy! Cecilia Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06. Disease-free, medicine-free, and very thankful to be healthy again. Back to Top

jblue65 Regular Member Date Joined Jan 2008 Total Posts : 381	Posted 7/4/2009 6:50 PM (GMT -6)
	I am sooo happy for you and glad you will be going home tomorrow. The end ileo is sooo much beter than the loop- I have only had the loop 10 days and I hate it. Anywah- I still have to get this infection taken care of and stupid butt drain out and then hope than in 8 weeks I can have the jpouch connected. After this are you done??? i wish you the best. I will look out my hospital room for any signs of fireworks.... hope you catch a glimpse or two. Jackie, 43 Pancolitis, DX October 06 Lexapro, Synthroid, Protonix- NO MORE PRED!!! Surgery March 13th- Total Colectomy Jpouch surgery to be done in 3 steps Step 2- June 23rd Step 3- TBA Back to Top

2b ColonFree Veteran Member Date Joined Nov 2008 Total Posts : 2603	Posted 7/5/2009 3:11 PM (GMT -6)
	so happy for you, Cecilia!! Hodaya 06/05/2007 - STARR procedure colonic inertia w/ pelvic floor dysfunction Back to Top

flchurchlady Veteran Member Date Joined Jul 2007 Total Posts : 2765	Posted 7/6/2009 9:55 PM (GMT -6)
	It is sooooo good to be home!! My big, comfy bed feels amazing! I did get to see our city's firework display from my hospital window. It was surreal... fireworks on morphine... a 4th I'll never forget!! Jackie, this is the last surgery for me! (God willing) Cecilia Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06. Disease-free, medicine-free, and very thankful to be healthy again. Back to Top

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