I'm SO ready for surgery!

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flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
 		   Posted 6/23/2009 5:39 PM (GMT -6)   
I look forward to getting this high output ileostomy reversed next week! My surgery is scheduled for Wednesday, July 1.
 
I've now lost 40 pounds in 2 months. Everything flies right through me, and I'm getting pretty tired of emptying a full pouch of liquid every hour or so.
 
It will be so nice to go back to my other ileostomy, which is located at the end of my small intestine. I would only empty it a few times a day and didn't have to have a big bag of IV fluids every night just to stay hydrated. Thanks for letting me vent.
 
I'll have my computer with me in the hospital and will keep in touch. :)
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
 		   Posted 6/23/2009 8:01 PM (GMT -6)   
Cecilia! I'll be thinking of you a week from tomorrow!!! Please keep us posted...I know I won't be the only one worrying!! smurf
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finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
 		   Posted 6/23/2009 8:30 PM (GMT -6)   

Cecilia,

I hope that your surgery goes well and you will have a quick recovery. I will keep you in my prayers.

Judy

 
 
Judy
 
spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)

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summerstorm
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Date Joined Aug 2006
Total Posts : 6571
 		   Posted 6/23/2009 10:01 PM (GMT -6)   
yay for surgery!
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flchurchlady
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Date Joined Jul 2007
Total Posts : 2765
 		   Posted 6/24/2009 3:04 AM (GMT -6)   
Thanks you guys! I appreciate your prayers and support. I have a really good surgeon who I trust, so I'm not going to worry. I figure I can have either fear or faith, but not both, so I choose faith! :)
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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peggy113
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Date Joined Aug 2007
Total Posts : 1998
 		   Posted 6/24/2009 6:53 AM (GMT -6)   
Cece,
I am so glad that you are all set for surgery..but esp that you trust your surgeon. That's a hard change to make, but in your case, I believe it is the right decision. Hey, you know, you can call me anytime day or night if you need/want to chat.

Say goodbye to that IV bag, and hello to life as it was prior to surgery. I will certainly be thinking of you. Please let me know or have DH let me know how things go.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
 		   Posted 6/24/2009 12:38 PM (GMT -6)   
good luck Cecilia! i will keep you in my prayers. bye bye bagie!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction

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Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
 		   Posted 6/24/2009 12:41 PM (GMT -6)   
Good Luck! :)
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!

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ohcountrybear
Regular Member


Date Joined Mar 2009
Total Posts : 192
 		   Posted 6/24/2009 1:02 PM (GMT -6)   
Good luck.... my prayers and thoughts are with you
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flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
 		   Posted 6/24/2009 1:36 PM (GMT -6)   
Thanks everyone for your prayers and support! It's great to have friends who have been through it and understand.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
 		   Posted 6/24/2009 3:26 PM (GMT -6)   
You have such a great, inspiring attitude! Wishing you good luck.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for '09 to form j-pouch

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XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
 		   Posted 6/24/2009 5:51 PM (GMT -6)   
CeCe- Good luck and you are in my prayers for a safe and quick recovery. I hope that yuou can get some of your nutrition back....40 lbs....holy cow....prayers your way.
 
Lizzie
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24
Cleveland Clinic in six weeks for further testing....awaiting approval.
 
"The Greatest Healing Therapy is Friendship and Love"

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flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
 		   Posted 6/25/2009 1:48 AM (GMT -6)   
Thanks, Lizzie! I appreciate your prayers and concern.
 
Once I have this high output ileostomy reversed and go back to my original one (yes, I currently have two), I will be absorbing more nutrients again. 
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
 		   Posted 6/26/2009 9:07 PM (GMT -6)   
Good Luck Cecilia!!
I hope everything goes smooothly for you!
I 'll keep you in my prayers.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

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flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
 		   Posted 6/30/2009 4:20 PM (GMT -6)   
Well, tomorrow's the day! I go in at 6 a.m. for surgery at 7 a.m. Thanks again for your prayers. I'll be in touch soon! :)
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
 		   Posted 6/30/2009 4:51 PM (GMT -6)   
YAY for reversal day! I'll be thinking about you smurf
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finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
 		   Posted 7/1/2009 3:11 PM (GMT -6)   

Cecelia,

You're most likely done with your surgery by now; I pray that it went well and that you are not in too much pain.  I hope that you will be feeling well soon and are able to come home.

Please let us know how you are doing.

Peace and prayers,

Judy 

 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)

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flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
 		   Posted 7/1/2009 4:45 PM (GMT -6)   
I'm happy to report that the surgery went really well! I have a pain pump, so I'm feeling very little pain, and get sleepy often. I'll touch base again tomorrow.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
 		   Posted 7/1/2009 5:36 PM (GMT -6)   
yay!
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Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
 		   Posted 7/1/2009 5:43 PM (GMT -6)   
I second summerstorm's YAY tongue
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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
 		   Posted 7/3/2009 11:00 PM (GMT -6)   
can I third that YAY...?

YAY!

and wish you a speedy recovery.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

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flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
 		   Posted 7/4/2009 4:55 PM (GMT -6)   
Thanks, you guys! I've had a very fast recovery and get to go home tomorrow!! I'm so happy!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
 		   Posted 7/4/2009 5:50 PM (GMT -6)   
I am sooo happy for you and glad you will be going home tomorrow. The end ileo is sooo much beter than the loop- I have only had the loop 10 days and I hate it.

Anywah- I still have to get this infection taken care of and stupid butt drain out and then hope than in 8 weeks I can have the jpouch connected.

After this are you done??? i wish you the best.

I will look out my hospital room for any signs of fireworks.... hope you catch a glimpse or two.
Jackie, 43
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA

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2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
 		   Posted 7/5/2009 2:11 PM (GMT -6)   
so happy for you, Cecilia!!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction

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flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
 		   Posted 7/6/2009 8:55 PM (GMT -6)   
It is sooooo good to be home!! My big, comfy bed feels amazing! I did get to see our city's firework display from my hospital window. It was surreal... fireworks on morphine... a 4th I'll never forget!! smilewinkgrin
 
Jackie, this is the last surgery for me! (God willing)
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

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