Ladies - your cycle and your ostomy?

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Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 6/24/2009 8:25 AM (GMT -7)   
Before the colostomy, whenever I'd get ready to start my period, I would back up and be constipated for about 3-4 days before and then once I started my period, the flood-gates would open, so to speak, and I couldn't get off the toilet.
 
Now, hmm..I'm having my first cycle ever with my colostomy.  Would that be the same?  I think it might be.  I ended up drinking some miralax on Monday because my stool seemed a bit too hard, and then it softened the next day and now I started my period today and I'm going to be changing bag #2 very soon for the day and it's not even 11am.  I usually only change 1-3x per day and most days its 1 or 2, depending on when I changed the day before.
 
Thoughts?  I know your cycle can affect your GI track..pretty normal, but I guess I'm wondering too if I need to drink miralax during those days before my period to ensure I don't get a blockage?  I'm aroudn 20g of fiber a day and I try REALLY hard to get my 8 glasses of water along with other liquids...but I can't say I always get there, I would say I definitely get 6 a day.
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Colozal. Failed Entocort. Failed Rowasa. Failed Steriods. Failed Steroid Enemas. Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira(severe reaction).
May 7th - Partial Colectomy - Sigmoid Rectal Ostomy - Partial Rectum left for possible re-connect later. Trying to get used to this new life with a bag.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 21 months old


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 6/24/2009 11:49 AM (GMT -7)   
Dang! I have no idea but I am worried about my period too. I just had a miscarriage the week before my surgery and I haven't had my period yet!

I'm thinking with the weight loss I may not have it for a while. But it is about to be 2 months since the miscarriage.

Hate to piggy back on your post and not have an answer for you.
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 6/25/2009 7:14 PM (GMT -7)   
Liza - piggyback away! :)

I ended up going through 4 bags yesterday and 3 today. I'm certain it has to be similar. Your GI track is affected by your cycle. I guess I should mention that they also suspect I have IBS (along with Crohn's), so maybe that's why? I just worry about blockages..even with a diet full of water and fiber.
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Colozal. Failed Entocort. Failed Rowasa. Failed Steriods. Failed Steroid Enemas. Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira(severe reaction).
May 7th - Partial Colectomy - Sigmoid Rectal Ostomy - Partial Rectum left for possible re-connect later. Trying to get used to this new life with a bag.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 21 months old


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/26/2009 8:45 PM (GMT -7)   
It took me about 3 months after surgery to get my period. (I only had one period b4 it since I was breastfeeding my daughter until a few months b4 surgery.)
I don't notice much difference, but I have an ileostomy.

I do feel like my cramps are worse and start earlier. B4 my daughter/ileostomy, I'd start the flow without any cramping, now the cramping is first. And I feel it alot more right at the scar from the lap procedure (bikini line)........But I guess that it could jsut be different after I had a baby.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

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