It's been a while since I've posted. I had my first surgery just over a month ago and I'm still recovering. The ileostomy is doing great actually. My issues were with the incisions getting infected. I'm feeling better each day, getting more energy, and I'm able to be a little more independent each day (which I'm sure my boyfriend is thankful for, lol).
My question though is this. Does anyone have any suggestions on how to gain weight? I lost 30 lbs in the couple months prior to the surgery, dropping me to 95 lbs. By the time I came home from the hospital after surgery, I was down to 89 lbs. In the last couple weeks, I managed to gain 2 lbs (yay!). But for the last week, I've just maintained my weight.
I eat every couple of hours, and I eat high calorie foods - mac and cheese, grill cheese sandwiches, cheeze-its, oreos, turkey burgers, potato chips, ice cream, etc. I'm even having a milkshake every day made with whey protien. What else can I do???? I need to gain weight and get my strength back. The dr won't even consider scheduling the next surgery until I'm back at a normal weight (125 lbs). Help!
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
1st Surgery for J-Pouch: May 22, 2009
Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda ( 2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg (Aug 2008), increased to 7.5mg/kg (March 2009), increased to 10mg/kg and increased to every 6 weeks (April 2009) - 7 infusions so far, next infusion on 5/28 continuing every 6 weeks; Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate); Prednisone 40 mg daily
Supplements: Women's One-a-day multi-vitamin; Super B-complex
w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis, Probiotic Align
Spinach and Sunflower seed butter diet (starting 3/21/09)
Current Status: June, 2009 - Recovering from the first stage of J-Pouch surgery; learning to live with a temp ileostomy; will have to have 2 more surgeries as my rectum was too damaged to connect a J-pouch - next surgery will create the pouch, then a third surgery will be needed to reconnect everything.