Calmoseptine...desperate attempt! Plus, hernia question.

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Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 6/25/2009 7:02 PM (GMT -7)   
Well, I'm dealing with bad skin irritation, so wondering more about the Eakin seal, I called Convatec since I already use most their products. I figured they manufacture this stuff, so maybe I'm missing something. The call was great. Of course now it seems I need a few more products but I have pretty darn good insurance for ostomy car so I'm not too worried. She is also sending me a patient starter kit with everything we talked about and a few other goodies to try.

So, here is my question. I feel like that's all I am right now...full of questions. I have BAD break-out around my stoma about 1/4" away from the stoma. It's blistery looking. After looking everywhere for my stoma paste (I change in 2 bathrooms, well 3 - 1 upstairs, 1 downstairs and then 1 at work) and not being able to find the paste and feeling it itching and burning, I took my wafer off (this is wafer #2 today) and could tell how badly it was broken down. Deciding I needed to put SOME sort of skin barrier on there...I decided to use calmoseptine. It's basically like super baby rash skin barrier, but more for adults. Whenever I had BAD fistulas and abscesses and drainage and was RAW, I would put it on and the next day I would be nearly clear. I'm not kidding..at one point I wasn't able to sit on a pillow on a soft chair, the next day after religious use of calmoseptine? I could sit on a chair with no pillow. So, Anyway, do you think this is bad? I just needed a barrier and I had no paste. I left enough around the outer edge so the wafer is actually touching my skin, but I was desperate.

Also, hernias... do you get them around the stoma? I think I might have a small one now. Not sure what I did. It feels sort of solid around the stoma area. Maybe it's just all the irritation affecting the the area? I'm worried I may have lifted something too heavy... I knew that might be a downfall for me.
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Colozal. Failed Entocort. Failed Rowasa. Failed Steriods. Failed Steroid Enemas. Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira(severe reaction).
May 7th - Partial Colectomy - Sigmoid Rectal Ostomy - Partial Rectum left for possible re-connect later. Trying to get used to this new life with a bag.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 21 months old


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/26/2009 12:38 PM (GMT -7)   
I love Calmoseptine Ointment and put it on the skin around my stoma all the time, so that was good thinking on your part.
 
Have you told your surgeon or Ostomy Nurse about this skin irritation? I got one when I first had my ileostomy, and my doctor called in an antifungal powder to the pharmacy called Nystatin. It worked well and cleared it up for me.
 
Eakin Seals are great. They are moldable disks that you put around your stoma under your wafer. The heat from your body makes them mold around the stoma and through the wafer, so nothing can get onto your skin. They really work better than Stomahesive paste.
 
I've never had a hernia, so I don't know anything about them, but good luck with getting the skin irritation cleared up!
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 6/26/2009 7:49 PM (GMT -7)   
Cecilia - the burning is GONE today....I'm thinking about leaving this wafer on until morning and then changing it again, that'll be about 36 hours. I know with irritation you need to change more often.

I'm getting samples of Eakin seals and then I'll probably order those. Right now I just ordered the wipes. I have also started just using wet paper towels to clean it up...seems the cottonelle wipes I use when I'm not changing my wafer may be causing some issues.

I haven't called my surgeon or my nurse about it. I think, honest to goodness, the calmoseptine did it again! So, if it's not any better by Monday, then I suppose I need to call and get it situated.

Thanks for the reassurance!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Colozal. Failed Entocort. Failed Rowasa. Failed Steriods. Failed Steroid Enemas. Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira(severe reaction).
May 7th - Partial Colectomy - Sigmoid Rectal Ostomy - Partial Rectum left for possible re-connect later. Trying to get used to this new life with a bag.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 21 months old

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