Help - Going into emergency surgery for charkot disease - but how do I empty in bed?

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schrek-chewbacca hunk
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Date Joined Jun 2005
Total Posts : 2666
   Posted 6/26/2009 5:05 AM (GMT -6)   
Hello all, I will be going into the hospital next Wednesday for about a month and then home.  I will be flat on my back and not able to weight bear at all - or move too much.
So, I have a thought of what I came up with post ostomy surgery - empty into a large ziploc bag, and clean tail with baby wipes with limited flushing with water/squeeze bottle.
With more frequent bag changes - planning on every day or 36 hours.
What are your thoughts any advice?
My leg will be in a cage with pins instead of a cast for reconstruction.  That will be on for 2 months - so this is not good news.
Worse mother in law is coming back to help
Thanks  in advance and love to all,

Regular Member

Date Joined Jan 2009
Total Posts : 125
   Posted 6/26/2009 6:15 AM (GMT -6)   
Bob, do you use a two piece appliance? IF so, you could turn the appliance so it angles down your side, instead of down towards your legs. Or, is a two piece appliance an option? I'm sorry I don't have any other suggestions. Good luck!!

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 6/26/2009 8:36 AM (GMT -6)   
i would use a container instead of a bag, it would be easier to handle.
Do you remeber in the hospital how they empited it into that large hard plastic measuring cup like thing? (well they did for me anyway) i would think something like that would be the best to get.

schrek-chewbacca hunk
Veteran Member

Date Joined Jun 2005
Total Posts : 2666
   Posted 6/26/2009 11:06 AM (GMT -6)   

Yes, I was planning on the tail sideways...the problem is I used a male urinal in the hospital with no lid, and there may be times when I am odor would be the problem.  I used the zaiploc in the hospital at the end, but I had far less output then, and it worked...but I am nervous to say the least.


not to mention my MIL will be all over me about the odors and how I am ruining her daughters life. 

Regular Member

Date Joined Jan 2006
Total Posts : 449
   Posted 6/26/2009 11:23 AM (GMT -6)   
Can you move to a disposable system during that time? If insurance causes issues, get your doc who has done the surgery to contact them about it.

My insurance covers disposables and I don't know how I'd do it any other way!
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Colozal. Failed Entocort. Failed Rowasa. Failed Steriods. Failed Steroid Enemas. Failed Remicade, Failed Clinical Trial ABT-874/Aisle 12, Failed Humira(severe reaction).
May 7th - Partial Colectomy - Sigmoid Rectal Ostomy - Partial Rectum left for possible re-connect later. Trying to get used to this new life with a bag.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 21 months old

Regular Member

Date Joined May 2008
Total Posts : 159
   Posted 6/26/2009 7:24 PM (GMT -6)   
your mother in law needs HELP. i hate people like her......and someday something will happen to her and she will wish someone will not make her feel like a bother... just as long as your treating your wife with love and respect and being a loving husband to her. how can anyone say that treat you like that.. becuase that is was marriage is all about . for better or for worse. and EVERY ONE OF US WILL HAVE SOME POINT IN OUR LIVES WHERE WE WILL NEED HELP IN SOMEWAY. unless we die before that happens. and to the ones how dont understand ,,,,,,,,,, i hope they get the same treatment they dished out to someone else.. I am sorry you have to go thru that..

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 6/26/2009 10:24 PM (GMT -6)   
OH NO! not the MIL again! Can't you ask her NOT to come. You don't need that kind of help.
Hang in there.
I would try putting on the longest bags you can buy (I know you're tall, so you may already use long bags).
The last time I was in the hosp. I used the long ugly ones they gave me at the hospital after my surgery. They were clear and soo ugly, but they stayed on for about a week, and I could hang them over my side (like previously suggested).
I emptied into one of those hospital bathing bins they give you. It was easy to empty into, then easy to dump into the toilet and clean.

Good Luck Bob!
I'll pray for you.
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

Liza D
Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 6/27/2009 6:55 PM (GMT -6)   
I would ask the hospital for the container or if they have any suggestions. Some of the nurses had no idea how to deal with emptying my bag the first couple days so if someone tries and doesn't do it right- tell them not to touch your bag and stick with what they know! It was so nasty when they spilled everything all over ME!

Good luck. Sorry to hear you are in this spot- or better yet will be in one spot for a while. :)
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 6/28/2009 3:08 AM (GMT -6)   
I meant to tell you that i really hope all will go well for you, and that you will have a speedy and easy recovery.
As for you MIL, well karma is a b*&(*!
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