Total Colectomy at 18

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pumpumx3
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/26/2009 8:42 AM (GMT -7)   
Hi, I had a total colectomy on Wednesday last week, June 17, and just wanted to let people know that having the surgery can be fine and not have too many complications.  I had a total colectomy with ileorectal anostomosis and only need one surery and need to continued to be monitored due to having FAP.  My grandpa and mom were both identified with it so my sister and I were tested when I was 12.  I was found to have FAP and was getting colonoscopies and in March of this year I was told I should get the surgery this summer due to more polyps present.  My best advice for anyone going through this surgery is to not think about the surgery and be calm, I was the calmest person in my family the morning hours before my surgery.  I was in the hospital for four days after surgery and my main problem was nausea; the doctors found an anti-nausea medicine for me and on the second day after surgery I was up and about walking and exploring.  I hope this helps someone and anyone can rspond to this to talk to me personally.  I had my surgery at Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire.
-Pumpum :-) Just stay calm and relaxed, don''t focus on the surgery... I know it's hard, but it works wonders

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 6/26/2009 6:11 PM (GMT -7)   
That's great that your surgery went so well! Thanks for the advice. You have an amazing attitude.
 
My proctocolectomy went that smoothly, too. I was home after 4 days and driving the next week! I was very calm going into it, in fact, I was excited to get rid of my diseased colon and rectum! It was the best decision I've ever made.
 
I'm glad you're doing so well. :) 


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/26/2009 8:18 PM (GMT -7)   
Good for you Pumpum, to be brave enough to talk about it. I know you'll help others with your advice.
Keep up that positive attitude!!
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


pumpumx3
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 7/1/2009 11:01 AM (GMT -7)   
A question, are there some runners out there who are back into it after a colectomy and have any tips for me? I love to run and am sad that I can't for a few weeks, but I definitely want to get back into it by the end of the summer if possible. Any advice would be greatly appreciated:D
Thanks,
Pumpum

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 7/3/2009 5:25 AM (GMT -7)   
Pumpumx3-You have the kind of attitude that inspires people. Bravo!! As for the running, you can do ANYTHING you want after you've healed.  Please take my advice and consult with your doctor before you start running, or doing ANY exercise for that matter. You shouldn't over-do it too quickly.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 7/3/2009 6:37 AM (GMT -7)   
Glad to hear things went so well with your surgery!! I am sure your attitude is very comforting for many people...keep it up!!!

Just remember you've had MAJOR surgery but once your body has healed you'll be able to do anything...just like vette guy said!

Hisgal
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 7/3/2009 8:23 PM (GMT -7)   
PumPum,
I am scheduled to have a total colectomy with ileorectal anastamosis this coming Wed. Is this what you had? Are you telling me that you literally felt GOOD right after the surgery?
Hisgal

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 7/3/2009 10:26 PM (GMT -7)   
PumPum,
When I've jogged (not regularly enough to be considered a runner......), I've worn supportive underpants to tuck my bag in to. So it doesn't flop around.

Other than that, it's all the same as b4. Well, not really, I don't have to race to the bathroom in the middle of my workouts. :)
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


pumpumx3
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 7/5/2009 7:45 AM (GMT -7)   
Hisgal,
That is the same surgery I had. I didn't feel the best after surgery; mainly I was a bit out of it because I had a PAC with morphine. My family said that I hugged my dad about twenty times, but I can't really remember this persistence. When they first checked my stomach afterwards it did hurt, but I then found that pushing my PAC pump right before they checked worked well and I wasn't in nearly as much pain. My best advice for your hospital stay is to tell them if a medication isn't working or isn't working correctly (like my first anti-nausea meds that made me very queezy feeling). I hope this helps you and reply back with any more questions.

Thanks for all the advice above, I promise I won't go too fast back into exercising :)
Pumpum (my real name is Kerry)
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