Back from stage 2 of 3 jpouch- OUCH

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jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 6/26/2009 10:54 PM (GMT -7)   
They let me out pretty quickly- I had surgery 7 am Tues. and out tonight at 6pm. I am ok just in lots of pain and taking Percocet. Stoma working fine and all other incisions ( lap) are ok. just really sore.... At least I knew kinda of what to expect this time. One more surgery to go--- don't know when yet.

Take care all---
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA


ElliUK
Regular Member


Date Joined Mar 2009
Total Posts : 74
   Posted 6/27/2009 3:20 AM (GMT -7)   
Hi Jackie,
 
Glad you got home quick - i hope you cope with this recovery well.  Your right about knowing what to expect now - might be less stressful this time round. 
 
I take it you got a loop ileostomy now?  Did they do a bikini cut on you?
 
I have decided to go ahead with Jpouch - looking for my step 2 around sept time.  Following UCFree on twitter is a great insight.
 
 

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 6/27/2009 10:52 AM (GMT -7)   
We didn't get to see you sorry :-(
I'm glad you're ok and step 2 is now complete and a success!!

One more to go ........ you can do it !!!!!
--
Diagnosed with Ulcerative Colitis - 1998
Failed, Azathioprene, Homeopathic, Ayurvedic, Remicade, Humira treatment
Steroid dependent - 2009

Temp ileostomy - April 7th 2009 (4 days)
Dehydration - April 24th 2009 (2 days)
Fluid around J Pouch and high fever - May 11th 2009 (4 days)
Takedown surgery - June 3rd 2009

Follow my progress on twitter:
@ucfree
http://www.twitter.com/ucfree


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 6/27/2009 2:02 PM (GMT -7)   
Elli- Bikini cut and it hurts. Everything hurts- feels like some took salad tongs to my insides. The ileostomy is working fine- indented not raised like the end ileo so getting used to that. I am glad you are going through with it. Not feeling great right now but I still know this pain will pass and I will get better

Uc free-
Yeah- was hoping to see you and wife. The day was weird. I waited for Mary Lou to take out rod all day. She came at about 3:00 and then I was out.

You are right- Dr. Schochet is great. He said- you are doing well and now it is time to go home and recover. They were actually surprised to see me doing well in such a short time. Of course the pain is well--- Did I mention the pain? ha
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 6/27/2009 4:42 PM (GMT -7)   
Why is everyone going three stages? I had a total colectomy and they did the J pouch at the same time. Is that not what you did too? Why do would some one need an ileostomy and still have their colon? Is it in hopes that it will heal while with the bag? Just wondering...
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Meds just stopped working so I took the problem out! No more colon and all kinds of excitement!


Lyonene
Regular Member


Date Joined Jun 2009
Total Posts : 64
   Posted 6/27/2009 9:07 PM (GMT -7)   
Speaking only for myself mine is being done in three stages because I was too ill -- the surgeon wouldn't do the j-pouch at the same time as removing my colon.  He wants me to get healthier and off prednisone between the surgeries.  I'm off the prednisone, definitely healthier, and just waiting for step two now.
Heather
Liza D said...
Why is everyone going three stages?


spiderman
Regular Member


Date Joined Jun 2009
Total Posts : 30
   Posted 6/28/2009 2:39 AM (GMT -7)   
3 stages is normally the norm when the initial surgery is done in an emergency. The colon is removed leaving the rectal stump intact and an ileostomy is formed (the end of the rectum may also be brought of the abdomen too resulting in a mucous fistula). Once the patient has recovered stage 2 is performed, the rectum is removed, the pouch and a temporary diverting ileostomy is formed. Once the pouch has healed stage 3 id performed and the stoma taken down. In healthy patients it is possible for steps 1+2 to be done together, 2+3 can also be done in one step and in a small number of cases the whole surgery can be done in one step.

HTH


Peter

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 6/28/2009 7:49 AM (GMT -7)   
couldn't have said any better myself- 3 steps takes longer obviously but indicated in many cases
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA

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