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Liza D
Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 7/6/2009 8:03 PM (GMT -6)   
I am about half way through my use of the bag and my skin around the wafer is so itchy!!! I can't keep my fingers off it. Any advice for stopping this?
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

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Regular Member

Date Joined Jan 2008
Total Posts : 381
   Posted 7/6/2009 8:22 PM (GMT -6)   
I had something very similar and it turned out I have an allergy to the durahesive on the wafer. Mine turned into a bad bad rash- so try to do something to nip it in the bud. Can you talk to a stoma nurse. I am using stomahesive instead.

Good luck
Jackie, 43
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 7/6/2009 9:10 PM (GMT -6)   
you may have a leak also

Regular Member

Date Joined Mar 2008
Total Posts : 137
   Posted 7/7/2009 9:15 AM (GMT -6)   
Liza, do you mean the skin on the outside edges of your wafer is itchy? Or, the skin closer to the stoma?

If you are talking about the skin around the outer part of the wafer being itchy, i know exactly what you mean--happens to me frequently, especially if I wear pants that the wasteband pushes down hard on part of the wafer.

My itch never turned into a rash, it just was annoying. :) I now use a skin-prep wipe (which does cut down on my wafer's wear-time...I get about 3 days out of each wafer instead of 5 like I used to), but my skin hardly ever itches anymore. I also used to get small pink bumps on occasion, but again that has gone away by using the skin prep wipes. The wipes leave a clear, thin film on your skin that protests it from the paste and wafer on top.

Hope you find a solution that works for you! That itch can drive you nuts because there really is no way to actually scratch it well!!


Jesse's Girl
New Member

Date Joined Jul 2009
Total Posts : 3
   Posted 7/8/2009 8:55 PM (GMT -6)   
Nystatin powder has really helped my skin settle down and stops the itch, but you've got to get it from a doctor. I also have found benadryl cream works well, but you should tape the bag down to make sure it's pressed down long enough.

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 7/9/2009 3:18 AM (GMT -6)   
Sometimes the foods you eat can cause wafer breakdown more rapidly and when this happens, the itch can drive you crazy. I found that I can usually stop or slow the itchiness by rinsing the inside of the pouch with cold water and be sure to splash it up around the stoma really well. That usually buys me 1 or 2 addt'l days of wear time. I usually get 7 days wear time anyway and can be really lazy about the change time. I also use Eakin Seals which really prevents breakdown of the wafer around the stoma opening of the wafer.

Let us know how it is going and what is working for you. It may help others with the same questions.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 7/9/2009 6:21 AM (GMT -6)   
I cut most of the tape around the wafer off...the itch stopped when I did that:) and I still get great wear time!
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