Happy 25th BD to the new ME!

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Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 7/8/2009 8:05 PM (GMT -6)   
25 years ago over the 4th of July I had my final surgery for my Crohn's Disease, my ileostomy was born.  The beginning of the new me.  I still remember that surgery like it was yesterday.  I knew that it would be life changing; and it sure has.  Much better than I could have every thought it could be.  When I finally gave in to have the surgery, I knew that I would be having an ileostomy for the rest of my life.  I was so scared at the time, but now I know that life has been so much better for me - no meds, no pain, I can eat well and enjoy it, travel, whatever I WANT to do with very few limitations - except camping....I don't do outhouses!!!  (Sorry)
Hope you all had a great 4th of July.  And a great summer so far.   What are some of your plans?
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Regular Member

Date Joined Aug 2008
Total Posts : 470
   Posted 7/8/2009 9:13 PM (GMT -6)   


It's so great to hear success stories and to know that there are people that have good  long-term results.  You've been such an inspiration to the rest of us!

As for summer plans, I'm just planning on letting my body heal from all of the kidney issues and the c diff so that I will be able to go back to work in the fall.  My daughter is home visiting us from Mrytle Beach for the week so we are enjoying having our two girls home with us :)  I know most people can't wait until the kids are gone on their own but we aren't to that point yet, though we did have 2 mos without either of them and it gave us a taste of what it's going to be like - it was kind of nice :-) .   I'm also looking forward to celebrating my 1 year birthday to the new ME on the 17th of this month.

I hope you have a healthy, enjoyable summer!

Blessings and peace,


spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
Am now down from 17 meds a day to 8 and VERY healthy:)
There's always hope and things will get better :)

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 7/8/2009 9:36 PM (GMT -6)   

I have really no plans for the summer, lol. just hanging out i guess, my life is boring

vette guy
Veteran Member

Date Joined Nov 2006
Total Posts : 650
   Posted 7/8/2009 10:24 PM (GMT -6)   
Peggy-I LOVE reading posts like yours. Congratulations on your silver anniversary!

Veteran Member

Date Joined Dec 2008
Total Posts : 511
   Posted 7/8/2009 10:52 PM (GMT -6)   

Whoo Whoo for PEGGY!!!!  smilewinkgrin


I was just telling my husband that February 6th is just as important as any other birthday in my life.  It's like when you tell someone how old your infant it by the months, that's how I've been doing it with Penelope and my UC Free lifestyle!  I'm five months healthy!!!!

I cannot wait to hit the 25 year mark!  I know it's going to be great, and hearing your story about how wonderful it has been for you is WONDERFUL!!!!!

My family and I are traveling to Colorado the first week of August.  We're staying in the same cabin from our childhood and this is the first time we're all brining our families out there.  Hence my husband, son, sister-in-law, nephew, brother-in-law, nieces...the list goes on!  I am a little nervous traveling with Penelope but I know it'll all be okay.

I'm SO HAPPY to hear you've had a nice summer thus far, and that you're new you is 25 years old!!!


: )  Robin
29 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open."  -Unknown

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 7/9/2009 2:54 AM (GMT -6)   
Just thinking about the time .. 25 years, well, that means that I have lived longer WITH this ileo than WITHOUT it. I never thought that day would happen!!!! W o W!!!!

Thanks for all the great comments... wishing you all the best of health and success for any of those contemplating or recently gone thru this surgery. It is possible to live a healthy, active, normal life. Yeh, we all can have little bumps along the way, but they are short-lived when you look at the big picture.

Yea --- I agree, WOOOOO HOOOOOOO for me!!!
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 7/9/2009 4:10 AM (GMT -6)   
Congratulations, Peggy!! Any plans to celebrate?
My summer trip is to go swimming with the dolphins at Discovery Cove in Orlando with my sister and her daughter. I've always wanted to do that and figured there's no time like the present! It's definitely a trip I could not have done pre-surgery with active Crohn's. I love my ileostomy!! smilewinkgrin

Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 7/9/2009 6:05 AM (GMT -6)   
Happy Birthday! It really is AMAZING what life can have in store for us!!! I'm on 10 years and love to hear the longevity stories tongue

You inspire all of us Peggy...

Regular Member

Date Joined Jan 2008
Total Posts : 381
   Posted 7/9/2009 6:33 PM (GMT -6)   
Thanks- I needed some uplifting stories today.... I hope to look back in a year with joy
Jackie, 43
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA

Regular Member

Date Joined Oct 2008
Total Posts : 262
   Posted 7/9/2009 6:53 PM (GMT -6)   
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 Ileostomy Reversal March 9/09

Veteran Member

Date Joined Nov 2006
Total Posts : 552
   Posted 7/9/2009 8:24 PM (GMT -6)   
Happy birthday Peggy and stoma! Bratcat just had the one year anniversary of her step 1 surgery (July 3). What a glorious reason to celebrate!

--Mom of bratcat (18 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect! Living and loving life as a teenager should!
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 7/11/2009 3:23 PM (GMT -6)   
You are an inspiration. May this year be the best one ever!!!

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 7/11/2009 8:25 PM (GMT -6)   
Thank you all for the nice comments. I have just been eating anything and everything I want WHENEVER I want!!! Watching the grocery bill this month is futile!! But it is only the 2 of us, so what the heck!!! We pretty much eat whatever we want anyway, within reason.

As far as plans - We have a lot of visitors coming to see us this month (friend of ours from OH; then In-laws, then a group going to the Brickyard race with us). We hope to plan a trip to Utah maybe in August, but my DH's health and ability to walk is deteriorating very quickly. We may end up driving so that we have his power chair for him to use.... we'll see. I will be the driver and it's a long way to UT from IN!!!!
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

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