So I have been having some serious issues with my stoma. I have not namer her yet, but it has been quite a three months. I have had 6-7 partial obstructions in the last couple months since being discharged in the begininning of May with my new ileostomy (not sure if permanent yet). I have also been having problems with leaking. I have been through three different appliances after two visits to the ostomy nurses. I have a tiny ileo that measures just under 7/8 '' if I push it out, otherwise the top is normal and the bottom retracts into my body and then it measures 3/4''. I have tried two types of Hollister, and just tried the modable convatec. With the hollister I cannot last more than every other day and have bad skkin tears around the perimeter of stoma and with the convatec I had it on for 45 min this morning and I am a nurse and I felt something funny at work and looked at my aplliance only to have it leaking everywhere where it always does. I had to call my husband and thank goodness we live close to where I work and he had to bring me my old hollister supplies. He then came and forgot my barrier ring, and had to go home and get it! By this time I had removed the other and had to start two pts chemotherapy with gauze taped to my stomach. Another good thing I work in the hospital setting. So.....
Question....have any of you tried the Marlen one piece? I am very nervous. They said this is my last ditch effort to try and stop the leaking? but I am afraid of having a one piece? I always rinse my bag our with soap and water at least twice a day ( I am a little OCD). I do not know if that will be very easy with a one piece....also, are there other brands our there that you all know of? I have a retched little stoma that is very naughty to me and my skin. I go to Cleveland clinic next week for my consultation with a pelvic floor specialist/colorectal surgeon to see if I can get some sort of reversal surgery (j or k pouch, or just reconnected). Another question......I have had five BM's (loose to soft since the fourth of July out of my rectum and not just mucous....remember I have not had anything out of my rectum normal in almost a year) and now I have urges to go to the bathroom almost daily. Is this true for any of you? or is this my body maybe working???
Sorry for the lengthy email.....just frustrated
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24
Cleveland Clinic in six weeks for further testing....awaiting approval.
"The Greatest Healing Therapy is Friendship and Love"