My daughter had the j-pouch surgeries last year. For her, it was the best decision. She did try some of the harder-hitting drugs (which in the beginning we swore she wouldn't ever try). Unfortunately they didn't last long for her. She had a temporary ileostomy in between her surgeries. She never loved it but learned to deal with it. Hers was a loop ileostomy, which I understand has alot more output than an end ileostomy (which a permanent ostomy is). At least I think that is the case.
If you are contemplating surgery, speak to a surgeon (or two) and get as much information as possible now while you have time to process it all.
--Mom of bratcat (18 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect! Living and loving life as a teenager should!
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp