Update! More Surgery!

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Date Joined Jun 2005
Total Posts : 981
   Posted 7/15/2009 8:04 AM (GMT -6)   
Hi All,
Well I knew this was coming but didnt think it would happen so soon after my ileostomy surgery on march 4th this year, we are now having to take the rectum and anus out and its happening on the 30th of this month. Also saw the rheumy yesterday and he has put me back on methotrexate for my joint pain which is almost certainly RA. If the methotrexate is unsuccessful then we will be going for humira again as well. They have said that once this surgery is completed it should help my eyes and joints as well since I have also suffered terribly with iritis. I am really scared about undergoing another surgery, I know there is no other road left for me. Its all just so final, I guess eventually having an ileostomy will become second nature for me but feel as though Im still trying to get my head around all this. My surgeon originally thought we would be able to wait for at least 12 months before we would need to do this surgery but because of my current problems and liver readings being so high again they said it cant wait. Sorry Im ranting a bit. Just need to get this off my chest. Thanks for listening and being there. I hope u are all well

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 7/15/2009 11:41 AM (GMT -6)   
Sorry to hear you'll be having more surgery!! Hang in there, once you get through recovery you will start to feel better:)

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 7/15/2009 3:19 PM (GMT -6)   
I'm sorry you have to go in for another surgery, but if you have active Crohn's, it's best to get rid of the parts that are diseased. I felt so much better after my proctocolectomy in 2006 and have been Crohn's free ever since.

I had my ileostomy for 8 months before having a proctocolectomy and actually had a harder recovery with the ileostomy than the other, because my ileo took 10 days to work. With the proctocolectomy, I was out of the hospital in 4 days and was driving and grocery shopping after 2 weeks. I was so surprised, because I was expecting the recovery to be much worse.

Since your ileostomy is already in place and working, you are not going to have to wait for it to work, which can take up to 2 weeks with a nasty NG tube in place and no food or water.

Hang in there, it's going to be okay! (((big hug)))
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 7/15/2009 8:54 PM (GMT -6)   
Thanks for replying guys, I really appreciate your help. Cecilia it makes me feel so much better hearing your experience with this surgery and how much better it has made u feel. It gives me hope. My surgeon did say to allow at least 4 weeks recovery but did say it was possible to bounce back faster as well. I guess I have just been so negative since everything seems to get worse as I go. Take care and thanks again for your responses
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