hi, about four years ago my small bowel started to slow down. things steadily got worse and worse and eventually after several mis diagnosis i was sent to manchester to the intestinal failure unit. At this point nothing was passing my small bowel and I was obstructed. I looked nine months pregnant with twins, was in constant pain, and continually vomitted faecal vomit. My weight had dropped from 10 stone to 6 stone. I had already been started on tpn therapy via a hickman line. In order to basically save my life a jejostomy and loop illiostomy was performed. Litres of gastric fluid and all sorts was revoved during surgery along with all my small bowel minus 30 cm. My large bowel was left intact but non functioning.
This was a year ago and i have come a long way since then. I continue on nightly tpn and can eat small amounts of which i dont really get any nutritional value. I am on strict fluid restriction. My weight has returned to 10 stone and rising so my calorie content of my tpn has been reduced. i continue on the same fluid regime. The biggest improvement has been in my mental state as i am now on an inti depressant which help and I have begun to come to terms with the whole thing. my stoma has a massive prolapse and is very active and liquid as you can imagine. I have had several hospital admissions due to low sodium but am managing much better to control my fluid intake.
I was recentyly at the cininc in manchester and it has been suggested that i may be able to get my stomas reversed and my small bowel (whats left ) reconnected to my large bowel. I am therefore going down to manchester in september for a screen of investigations and for distal feeding to my large bowel. this will let us know if i have enough bowel function to enable this. I am obviously very excited about this prospect but very scared.
I wondered of there is anyone on this formum who can relate to my problems and can offer me any advice or hope.
Thanks for taking the time to read this