Insurance and future doctor visits

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ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/17/2009 8:51 AM (GMT -7)   
So ... I had my colon removed and now I have a JPouch ...
If I go to a doctor I obviously tell them I am on Lomotil ... and NO OTHER MEDS THANK GOD !!!! :-)
However, do I also mention I do not have a colon and had this surgery? I'm sure it changes the way they treat other issues such as colds, flus and diseases?

Also, for insurance purposes ... do I indicated that I HAVE UC or I HAD UC? Also, do I indicated I have had surgery? I don't know how much is too much or too little to disclose to insurance companies. Also, I don't know if to say I have or had UC :)

help me please?


Thanks !
--
Diagnosed with Ulcerative Colitis - 1998
Failed, Azathioprene, Homeopathic, Ayurvedic, Remicade, Humira treatment
Steroid dependent - 2009

Temp ileostomy - April 7th 2009 (4 days)
Dehydration - April 24th 2009 (2 days)
Fluid around J Pouch and high fever - May 11th 2009 (4 days)
Takedown surgery - June 3rd 2009

Follow my progress on twitter:
@ucfree
http://www.twitter.com/ucfree


mamaluke
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 7/17/2009 9:11 AM (GMT -7)   
My advice would be to avoid mentioning UC at all costs, SINCE YOU NO LONGER HAVE IT!!!. You have a far greater chance of getting life insurance with a jpouch than you do with UC, so that's another benefit of surgery! Hope you're still doing well - my son is soon to go in for stage 2 of a three stage jpouch surgery. He's 24. I don't do twitter, but i do try to follow your posts on HW. Keep the info coming once in a while. hope you're continuing to be glad you opted for surgery.

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/17/2009 9:16 AM (GMT -7)   
It's a roller-coaster ride ... some days I'm awesome and some days it's a crappy world to live in! However, being 6 weeks post takedown .... I feel SO much better than I did when I was WITH UC.
I'm not taking any meds or anything other than Lomotil and metamucil. I worry and fret about the leaking at nights, but that will pass ... I've heard a lot about it and it will pass. I'm blessed to have very good support around me including you guys!!

How is your son doing? Just keep him positive .... it's amazing how much power the mind has.

:-)

PS. Any questions .. I'm all ears !
--
Diagnosed with Ulcerative Colitis - 1998
Failed, Azathioprene, Homeopathic, Ayurvedic, Remicade, Humira treatment
Steroid dependent - 2009

Temp ileostomy - April 7th 2009 (4 days)
Dehydration - April 24th 2009 (2 days)
Fluid around J Pouch and high fever - May 11th 2009 (4 days)
Takedown surgery - June 3rd 2009

Follow my progress on twitter:
@ucfree
http://www.twitter.com/ucfree


finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 7/17/2009 11:18 AM (GMT -7)   

Hi UCfree,

I don't know much about the insurance issues but I do know that you DO need to inform your dr about your surgery if you have an infection, cold, etc and he/she wants to put you on an antibiotic.  You are at risk of getting c difficile from the antibiotics if they don't give you probiotics.  I just went through 2 mos of H*#L from this illness and almost ended up with a permanent bag - I had a subtotal one year ago TODAY -YAY smilewinkgrin !!!!!!! and came close to death and I was hospitalized in isolation.  My poor husband has had to disinfect our house with a bleach solution.  I was put on one med for 14 days and it came back the next day so they had to put me on another med for 6 weeks that cost $8,000.  thank God for insurance, so please let your PCP or any other dr treating you know you have had your colon removed.  It's been a long haul but we are praying it doesn't return because it can at any time.

I hope this helps answer some of your questions and that you are now feeling better.

Judy


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/17/2009 12:22 PM (GMT -7)   
Judy ... Congrats !!!!!!!!!! I'm glad you're better and thanks for the great advice.
I'm doing better ... it's been a rollercoaster ... but I think it was worth it.

At the end of the day, I have to think of where I'll be in the future ... :-)

Thanks!!
--
Diagnosed with Ulcerative Colitis - 1998
Failed, Azathioprene, Homeopathic, Ayurvedic, Remicade, Humira treatment
Steroid dependent - 2009

Temp ileostomy - April 7th 2009 (4 days)
Dehydration - April 24th 2009 (2 days)
Fluid around J Pouch and high fever - May 11th 2009 (4 days)
Takedown surgery - June 3rd 2009

Follow my progress on twitter:
@ucfree
http://www.twitter.com/ucfree


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 7/17/2009 1:12 PM (GMT -7)   
I have group insurance so I don't fear mentioning the dreaded, "I used to have UC". However, what I can tell you is that no doctor I have seen since surgery (one internist, one GP, and one dermatologist) even KNOWS WHAT A JPOUCH IS! So, be prepared to explain and describe your surgery in length and don't be surprised when they ask you where your bag is or if you have dumping syndrome or a host of other stupid questions. I find I do a lot of doctor educating and have come to learn that you need to educate them. In med school they only have one measly paragraph on this surgery. Other things to keep in mind:

1. Do not let a doctor prescribe medication in timed release form-it doesn't work for us
2. Do ask your primary doctor for an annual script of Cipro and flagyl- in the event you need it.
3. Do ask your primary doctor to run a B-12 check on every annual CBC test.
4. Do not be afraid to be demanding if you find some things don't work for you. As an example I cannot take OTC cough syrup. It gives me diarrhea. It doesn't matter which brand or if purchased in what country; they all give me diarrhea. So I ask for an annual RX for codeine cough syrup. I had to explain this entire quirky thing to my GP and tell her that I am not a drug addict (like you, no more meds!!!). She was reticient at first (because I was a new patient of hers) but she's now on board.

Oh, and if you find your funk days don't go away; don't be afraid to consider you have PTSD. Many of us have not escaped the horror of UC and surgery without resorting to temporary assistance in the antidepressant department. Completely normal and temporary.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 7/17/2009 2:21 PM (GMT -7)   
Oh that is some darn good advice too Sue !!!

I'm lucky, my GP is my best friend i went to school with in College. He's helped me immensely thru this ordeal! He showed up at the hospital the day of my surgeries with scrubs and made sure the docs and surgeons were on the ball :) I told him not to .... but he still did! :)

He's listened to me and given me scripts for many meds which have helped a lot ... the Cipro and Flagyl I'll keep in mind .. also I have a lot of VSL which I stopped taking for now but I know I have to take it after I finish my course of Cipro (incase I need it in the future).

My funk days are slowly going away I think .. I'm starting to do more and leaving the house more. However, I have some days where I just have diarrhea (like today) and I wonder, is it what i ate last night, or something i ate this morning? Could what I ate last night affect me all day today?

Thanks a lot for the advice and maybe we'll see u in the chatroom tonight?
--
Diagnosed with Ulcerative Colitis - 1998
Failed, Azathioprene, Homeopathic, Ayurvedic, Remicade, Humira treatment
Steroid dependent - 2009

Temp ileostomy - April 7th 2009 (4 days)
Dehydration - April 24th 2009 (2 days)
Fluid around J Pouch and high fever - May 11th 2009 (4 days)
Takedown surgery - June 3rd 2009

Follow my progress on twitter:
@ucfree
http://www.twitter.com/ucfree

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