TOTAL COLECTOMY PART 24

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finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 7/17/2009 8:47 PM (GMT -7)   
Lizzie,
 
I'm sooooooooo HAPPY for you!!!!!!!!!!!!!  Our prayers have been answered!!!!!!!!  I knew that you would find drs to help you.
 
It makes me so happy that things are FINALLY going to be positive for YOU.  You can handle the D if you have it; there are plenty of us here to give you advise on what to do to ease the side effects of the D :)
 
I just can't get over how thrilled I am for you :-) smilewinkgrin wink :-) , especially today; it's my ONE YEAR ANNIVERSARY of my surgery.  I was actually in recovery right now; boy does time sure fly!!!!!!!
 
I can't wait for you to be saying the same thing!
 
Hugs and love,
Judy
 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


tinkerbell2
Regular Member


Date Joined Jun 2009
Total Posts : 418
   Posted 7/18/2009 4:48 AM (GMT -7)   
Judy, happy 1 year anniversary! You sound very positive - which gives me hope! turn

Tracy, I really hope that the Botox works!

Lizzie, what great news!! I am so glad that things sound very promising for you!

I had typed a long reply yesterday - and lost it.. shakehead I hate when that happens!

answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 7/18/2009 9:09 AM (GMT -7)   
I am still so constipated. I took 3 doses of miralax with coffee today and went only a little bit. I took 2 doses yesterday.

And I still can't push down. I wonder if the push muscle and pull up muscle are on different nerves??? Because I must have nerve damage to the rectum. So far, the botox hasn't helped me. :( But, he said 48 hours, so we will see tomorrow.

How is everyone? It has been quiet so hopefully this is a good sign that somebody is out having a good time. NOT ME!

tinkerbell2
Regular Member


Date Joined Jun 2009
Total Posts : 418
   Posted 7/18/2009 10:26 AM (GMT -7)   
Tracy, when I had botox as a "beauty" treatment ( wrinkles) LOL.. it took 5 days for it to work. Everything I read about Botox is that it takes 3 or more days.. and it improves as each day goes by. I found that true with my face.. it got better and better for several days.

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 7/18/2009 12:00 PM (GMT -7)   

Lizzie,

i can't express enough how HAPPY i am for you yeah   yeah   yeah

this is such great news!!!! i'm SO glad there's still hope things will work out. and it also sounds promising to all of us with plvic floor disfunction.

i so hope for you to finally have your life back and able to be happy again. you deserve it!! love you!!


Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/18/2009 12:33 PM (GMT -7)   
Janie,
what's going on, love? i'm a bit concerned.... you havn't updated us on your dr's visit, is everything o.k, hon?? thinking of you.

Tracy, be patient, i've heard it takes more than just couple of days to notice any difference. i'm praying it works out for you!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 7/18/2009 7:36 PM (GMT -7)   
Lizzie,
I am so happy for you!!  You have been through so much and it sounds like things are  really turning around for you!   I know you are just so excited!!!
 
Judy,
Congratulations on your one year anniversary!  I only hope that at my 1 year anniversary I'm doing as well as you are!
 
Tracy,
Good luck with botox!  I don't know anything about the botox, but I'm hoping and praying it works for you!  Just wondering, and maybe you've said, but do enemas work for you?  My doctor told me to use them as much as I want to help clean out.
 
Hodaya,
Thanks for asking about me sweetie!  I had my appt. on Thursday; my doctor scoped me and said everything looked great.  I told him that things have really slowed down and I have a terrible time going sometimes.  He said I do have a rectocele, but he doesn't want to do the STARR procedure for at least a year after my colectomy, which will be another 8 months.   I knew I had pelvic floor dysfunction, so he wants me to try biofeedback again.  The first time I knew it wouldn't work well, because with my colon I could never get the stool to the rectum.  We're hoping that with biofeedback without the colon, I may have better luck.  Has anyone here had biofeedback work at all??  I really hope this works.  Yesterday I was miserable; I hardly went at all during the day, and my husband and I went out for dinner.  I had broiled fish, wild rice and brocolli.  It was horrible....I drank prune juice and finally got things moving last night but this morning I was still miserable.  My rear end was so sore from the pressure and diarrhea from the prune juice.  I took 3 hot baths after dinner.  It truly was horrible.  This morning I used Fleets Enema, and got some out, and then during the day went about 3 times.  I didn't eat until this afternoon, and had a chicken sandwich, chips and some ice cream.  I went once a little, but now I'm feeling really uncomfortable again.  This really does stink, and I'm so tired of feeling like I have a rear end full of poop.  I can't eat 3 meals a day or I'd be miserable all day.
 
On a happier note, we are getting our little pup in a few weeks.  She is just adorable; black face and tail, and white everywhere else.  I'm so excited, it's been a long time since we've had a puppy.  Our 2 dachshunds lived to be almost 15, so we haven't tried potty training a pup in forever!  Wish us luck!
 
Janie
 
 

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 7/18/2009 8:08 PM (GMT -7)   

Janie,

I hope the biofeedback works for you and you will get some relief.  I will continue to keep you and the rest of my colectomy family in my prayers in hopes that you will all be able to some day be healthy and have a successful year as I have had following this surgery.

Blessings, peace and prayers to all of you,

Judy


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/18/2009 9:04 PM (GMT -7)   
Janie,
i hate hearing about your dificulties, i'm so sorry. i can't imagine going through this surgery and still having to do enemas and suppositories. why can't he do you a defecography first before sending you to biofeedback? did he check the anastamosis for narrowing? can you go to cleveland clinic for a second opinion? i'm one to talk, but seriously, i really wish you could hear their opinion.

don't lose your hope, my dear! i think there's still a lot that can be done. when i went 2 and half weeks ago to see the surgeon who did his training at CC, he told me that they leave a small part above the rectum and i just thought this part can only cause probs, and now Lizzie is also saying that it's very possible that b/c this part is now removed after they did her illeo, her rectum works much better this way. so don't lose your hope, i think that it's true, maybe removing this part will solve the prob for you too. so can you go there too?

i so wish all of us can have normal lives again some day, and i truely believe it'll happen, it can and it will!! it's hard, but we must never give up.

thinking of you and praying for you!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 7/18/2009 10:39 PM (GMT -7)   
Hello my loves....
 
Thanks for all your replies. I am excited, but still holding onto some doubt because it does not seem real and I still have one more test in Cleveland....that darn defecography for the third time. I go back for this July 31. My surgeon here is aware of the news and said after getting all the reports from the testing we will go from there. Still having urges to go which is just such a nice feeling even though i am hooked up. Having some intense nausea tonight and up not feeling the greatest, but this is nothing new...anyways....please keep me in your prayers still. I hope after the test I can get a surgery date and have something to look forward to in my future. The thought of more surgery has me nervous as well....its supposed to be easier, but we all know how I love to have complications.
 
Janie,
I am so sorry for what is going on with you. I would be happy to give you the info to the two doctors I saw in Cleveland. Another consultatio or two could not hurt, but maybe help. Its nice to have a fresh set of eyes review your case. I would be happy to give you their contact numbers. I got in quick both times one insurance approved. Sorry you are so misearble...its such a horrible feeling inside. My scope was normal as well when they checked me and I did the biofeedback without luck, but maybe you will be different. Its hard to hold onto such little glimpses of hope but do not give up.
 
Tracy- How is everything going? Any luck?? My surgeon said 48 hrs as well when I had mine? Is anything working yet???
 
Judy- Happy one year anniversary....so happy you continue to do so well and I hope I can be there sometime in the future with you. I hope I will have advice to give people who are struggling the way I have.
 
Hodaya= Whats the word girlie/ I cannot understand why they just do not get you a date and just schedule you!! Thinking of you and praying for all of you.
 
Lizzie
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 and still recovering woth abdominal abscesses out 4/24
Cleveland Clinic in six weeks for further testing....awaiting approval.
 
"The Greatest Healing Therapy is Friendship and Love"


evans18
Regular Member


Date Joined Apr 2009
Total Posts : 195
   Posted 7/18/2009 10:57 PM (GMT -7)   
Lizzie I am so so excited for you!! I have been thinking of you and hoping that were you going to get some good news.
Janie how long has it been since surgery? I am also having some of the same problems with food. I ate a piece of pizza thurs. and wowy I will never never do that again. I woke up at three in the morning in terrible pain. I couldnt go to work that day. I think I am just going to have to stick to the foods that are easier digestion wise. Do you think that your problems are food related? I hope so because that is fixable.
Hodaya- how goes it with you? Still waiting I imagine. Well I hope it will be soon that you will be given the go ahead and have a date.
goin to bed for now. Will check up on ya all tomorrow.

Marisa

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 7/18/2009 11:00 PM (GMT -7)   
hey Liz,
i'm sorry you can't sleep. i'm working on having a bm right now. it's hard, not coming easy. i'm going to see the gastro specialist in just 3 hrs (sorry i just had to run to the loo to get some little brown out - those dran small portions every 1-2 hrs are so frustrating).
so i'm supposed to see him today and i honestly don't know what to expect. wish me luck!

please don't think about all the coplications you've had so far, please make room for some positive thinking, i'm so praying this will be a success. keep your faith!!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 7/18/2009 11:20 PM (GMT -7)   
Marisa, we were posting together, thanks for asking about me. well, as i posted above, i'm seeing this new doc today. G-D help me..

i'm sorry the pizza gave you so much pain. what kind of pain did it give you? did it cause you extra diarrhea? mmmm... i LOVE pizza, but i'm guessing i won't be able to eat it post op. i've heard horrible stories of complications caused by pizza!! boo hoo.. i must say if i have surgery, i'll definitly will try pizza!! i won't be able to give up on it that easy!!

how are you feeling otherwise? hope you're better now, take care! love you!
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/19/2009 11:58 AM (GMT -7)   
well, thought i'd give y'all an update on my dr's visit today. a reminder - it's the specialist the psych wanted me to see. so i go in and i meet this extremely nice proffesor and he sais to me "tell me what's bothering you", so i started telling him my history of 16 yrs of C, so he sais, "o.k. i'm gonna tell you exactly what's the deal, the psych didn't inform me of all of this information and now that i hear the whole story, i don't think there's anything else i can do for you, so let me talk to your gastro and psych and you call them in couple of days and they should let you know the next step.."

so hopefully i should have an answer on tuesday. again.... i have no idea what to expect.
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


evans18
Regular Member


Date Joined Apr 2009
Total Posts : 195
   Posted 7/19/2009 12:22 PM (GMT -7)   
Hodaya-I so hope that you get something on Tuesday. I dont know how you deal with all this run around. You are much more patient than me. I would have had a nervous break down by now. Anyway the pizza I ate was sausage and a cheese breadstick. It just smelled so good I couldnt resist. I got the worst abdominal pain all over and could not go to the bathroom. It was awful. I will definetly never be eating pizza again. I guess you just have to learn what you can and cant eat. The hard way! Other than that things are going pretty well. Work has been hard to go back to and I only make it half through the day most days. I just dont want to overdo. Well I hope all these docs your seeing can get their act together and come up with a solution for you. You have been more than patient.

Marisa

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 7/19/2009 2:35 PM (GMT -7)   
i wonder what's the deal with pizza that it causes such a severe blockage to those who are colonless..? is it the crust, cheese, sausege? the tomato sause? what? my brother's neighbour, who's a 24 yr old girl, who had the surgery b/c of polyps, at her first 2 yrs post op, she couldn't resist pizza and was hospitalized numerous times b/c of eating it... she was in real danger. tho she's learned her lesson since and avoiding it now.

do any of you know why the pizza is so problematic for those w/o a colon? are all of you w/o colon can't eat pizza?
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


Janiepain
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Date Joined Jan 2007
Total Posts : 662
   Posted 7/19/2009 3:31 PM (GMT -7)   
Hello everyone,
Thanks so much for the pep talks!  My doctor did check to see if there was any narrowing, and there wasn't.  I do know I have pelvic floor dysfunction, so I'm going to try the biofeedback and see what happens.  I do think alot has to do with my diet...I've tried not eating much at a time all day today and so far it's been a good day.   I've gone several times today.   Last night I felt lousy until I finally went a little before bed; then at 4 AM I woke up and went alot..felt so much better.  Sometimes I'm able to get it out, and other times not so much.
 
Marissa,
I'm sure my diet has something to do with my problems, at least some of the time.  I have kept a food diary since my surgery, which was exactly 4 months ago.  Pizza is definitely a no no for me.  I have the same problem...it just stops me up completely.  Not sure why.  I've tried it 3 times  (I'm a slow learner!!!) and each time I had the same problem.  I LOVE pizza, too.  Maybe down the road I can eat it again.  When I ate broccoli the other night, I had the same problem, also with steak and thick hamburgers, brautworst and hot dogs.  I can eat a small McDonalds Hamburger, but not any larger than that.  I'm not a big meat eater, so that's not a big deal.  What I need to do is just not eat again until I go after eating; if I eat lunch and don't go before dinner, then after dinner I'm much worse.  It's all just so frustrating though!
 
Lizzie,
Thanks for offering your info about Cleveland Clinic.  We actually have a Cleveland Clinic down here in Florida and I do plan to go there if I can't get this resolved.  I'm going to try biofeedback for awhile first though.  Your doctors are in Cleveland, aren't they?
 
Hodaya,
I didn't ask about a defogram, but I passed the initial one, although there was a slight delay.  I can get some out sometime, because in the middle of the night last night I passed large stools....of course, I was full from all day.  I'll definitely be bugging my surgeon more if biofeedback doesn't help at all though.
 
Janie

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 7/19/2009 3:39 PM (GMT -7)   

darn! so if i have surgery, then i guess it's bye bye pizza for good, huh? that's really unfair  sad  !!

is there anyone out there who is colonless and CAN eat pizza??


Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 7/19/2009 7:42 PM (GMT -7)   
Lizzie, I am so happy for you. it sounds like you are really headed to the good life.
 
Hodaya, sounds like maybe something will happen in your favor for a change. I am praying for you.
 
Well ladies, I still can't go. mad I am not in any pain other than the bloated belly...but, otherwise, I don't feel unwell as of yet. This has been going on for the last 3 weeks, taking more miralax, but not getting hardly anything out. I took some dulcolax that was expired, I will buy some more tomorrow, or maybe some senna. I have to be getting FULL by now. I have probably pooped, I would estimate, 4 ounces in the past 3 weeks. Has this ever happened to any of ya'll? I have used suppositories and even went and bought enemas, but only about 1/3 of the water came out.
 
I can go several weeks without having a bm and I am guessing this is why I am not miserable yet. I don't know what else to do. I hate to take too many stimulant laxatives because they make my colon have such "convulsions" and that really hurts and makes me so naueaus...
 
Could the botox make me worse? I obviously don't have a blockage because I can still eat and have no pain. Do any of you have any secret recipes I can try to get past this?  confused I hate when this happens because it takes forever to get back going again...I can't get the stool to my rectum and that is where my problem is right now.
 
If I don't go in a couple of weeks, then I may have to call the colorectal doctor.

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 7/20/2009 12:54 AM (GMT -7)   
Tracy, you poor thing, it really does sound like you're struggling hard. i don't know much about the possible affects of the botox. do you feel any different sensation in the rectum or the pelvic than before the injection? do you still feel it's numb? what i know is that it can cause incontinence, but not the opposite, never additional stiffness to the pelvic. but i really couldn't know. you think maybe it can cause the pelvic to be too weak or somthing, so it can't push? those are only my thoughts, you know, i don't know much about this.

i don't have it as bad as you, i still have relief when i take my enormous amount of laxatives, but every 2 mons or so i have to increase the dose and that's what i'm worried about too, that it will eventually stop helping me, then i'll REALLY be miserable. ALL the other laxatives have already stoped helping me, even if i take the whole bottle. i even tried to quit for a few mons and see if they can help again, but it's like i didn't take ANYTHING. there's one laxative that still helps me, but i'm terrified it'll stop soon. i don't know what i'll do then.

i hope you have felief soon. you're always in my prayers!


Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


coastfishin
Regular Member


Date Joined Jun 2009
Total Posts : 213
   Posted 7/20/2009 6:27 AM (GMT -7)   
Hi all, I was reading some older posts from 2007 and am getting worried.  People were talking about having uncontrollable gas and not making it to the bathroom even months after surgery.  I am really concerned about this.  They talked about having to wear depends and keeping changes of clothes at work, etc.  
 
As mentioned earlier I am a child care inspector and am in centers throughout the day.  I have mentioned worrying about urgency before and a couple of you said it wasn't a major issue.  Is that the norm or are some just more fortunate than others not to have these problems. 
 
This is one of my biggest concerns with the surgery. If I worked in an office it might not be so bad, but I can't imagine something like this happening while I am walking around a center. It's not like a can just excuse myself and leave.  My appointment with the surgeon is Thursday to discuss possible surgery.  I am a nervous wreck just thinking about making a decision.  
 
Also has anyone had this surgery who has gastroparesis? (stomach partially paralyzed so food does not digest at normal rate)  Wondering how this will affect things.
 
Thanks
Jen

answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 7/20/2009 6:46 AM (GMT -7)   
I have read nothing that says the botox can make the anismus worse, so, maybe I just got too relaxed and didn't take enough miralax. All the numbness is gone and I feel totally normal down there, including the inability to push down. For instance, if you place your finger in my rectum, I can't push it out. That is why I think I may have nerve damage to the rectum rather than just the anismus.

It just sucks to have 2 problems...colonic inertia and anismus.

My biggest complaint this week is not being able to get the poop to move down in the colon.

Lizzie, I was thinking about you and since I have read so much about our poop problems I was wondering if maybe you had intussesseption of the rectum????? And maybe when they removed part of your rectum, that they removed the part of your rectum that was affected. It was just a thought...but I know me and another lady have been dx with intussessption, but not all our doctors actually agree that they see the intussessption on the defecogram. I go to hyster sisters too and that is where I met the other lady. Remember it is my new doctor that commented that I have some "sliding" of the rectum. I am gointg to take my defecogram with me to my next visit and have him watch it again and ask him if this could be the problem. Anyway, that is just an idea??????

Tracy

answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 7/20/2009 7:01 AM (GMT -7)   
Jen, I have not had the total colectomy so I can't answer your question based on experience, but from what I have read and I have read ALOT, that the majority of people can control their bm's and around 90% are totally happy with their decision and that their quality of life is so much better. I know most people go alot at 1st, but they seem to slow down when the small intestine realizes the colon is no longer there. My doctor told me it is alot easier to control diarrhea than constipation. Hopefully somebody else will come along that can answer your question. I think I was posting the same time you were. :) Tracy

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 7/20/2009 7:44 AM (GMT -7)   

Hodaya,

I don't know why sometimes your posts are on my computer and other times they are not but they are here today and it makes me so HAPPY smilewinkgrin   because I soooooooo miss talking with you.  I'm so sad that you still don't have an answer yet, but it sounds promising that tomorrow you will finally hear from your dr. I continue to pray for you EVERY day.

about the pizza thing, I eat pizza at least once a week, and more if you count the leftovers.  I didn't eat it the first few months after my surgery but probably these past 4-5 mos we get a pizza every week.  We do get it with very, very light sauce and double cheese; I don't know if that has anything to do with it.  Plus I only eat one piece at a time as I still only eat small portions of food when I eat.  I seriously don't know what I would do if I had to give it up because as you see we have pizza at least once a week. 

My husband has been REALLY good about making sure I don't eat things too soon or things that might cause problems; I tend to take chances and pulls me back in probably due to the fact that he's the one that has been by my side through everything that I've been through and just wants me to stay healthy.

I guess I would say as far as foods are concerned, everyone is different in what they can tolerate and it's up to you to test your body.  I would just give your body awhile to heal and adjust before you try sauces and spicey foods.

Take care my friend.  Love ya,

Judy


 
 
Judy
 
spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
 
Am now down from 17 meds a day to 8 and VERY healthy:)
 
There's always hope and things will get better :)


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 7/20/2009 12:49 PM (GMT -7)   
Jen,
i totally understand your concerns. i'm also scared and don't know WHAT i'll do if it happens to me. but Tracy is right, i read ALL the parts of total colectomy from 1 to 24 and in all of them i'd say there are tens of women and out of them there were only 2 having this problem - Lori and April, now that's only a very small precentage really, so there's room for optimisim.

you can also ask your surgeon based on your specific condition, whether he thinks you have a chance of this happening to you post op. i know they can't always predict how things will be, but he can evaluate more or less, based on your tests, what the chances are in your case. you did have the defecography and manometry, i hope. good luck on thursday!

Tracy,
i feel so bad for you. if it is a nerve damage, then the botox can't do anything for you, can it? cause you're right, a nerve damage is much more than just anismus, not that the anismus is not bad enough, but having a nerve damage is obviously a lot worse, no doubt about that.

i think that what you call intussesseption is actually another definition of rectal prolapse. it's the same thing as prolapse but just a different word to say it. if you still have prolapse, then surely you won't be able to poop. i had major prolapse and a small rectocele and before the STARR i was hardly able to push down either, but after the STARR it has improved, but now i have the anismus.... uuuggghhhh you fix one thing, you mess up another :(

anyway, i think it would be a good thing to bring him the defecography and see what he sais about it. and it also depends on how severe the prolapse is. i still have a slight prolapse and 0.5 cm of a rectocele. according to the drs, it shouldn't cause significant probs. i hope you get some answers.

Judy,
you are simply the sweetest!! i SO miss talking to you too and i'm so glad you can see my posts again (you have a loon computer, no offense, eh?). mmmm i don't know, maybe by the time you check in again you won't be able to see this one, ha.. :(

thank you SO much for all your love and prayers, you have no idea how much that means to me and how much strength it gives me. you're simply such a loving and caring person and you always know how to encourage all of us. love you tons!

anyways.... i'm SOooooooo relieved to hear that you can eat pizza!!!!!!! YEAH!!!!!! now that was at least one real good thing to hear today! ♥ ♥ ♥ ♥
 
tinkerbell, how are you doing?


Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction

Post Edited (2b ColonFree) : 7/20/2009 1:53:57 PM (GMT-6)

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