new illeostomy and dehydration

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New Member

Date Joined Jul 2009
Total Posts : 1
   Posted 7/21/2009 7:52 PM (GMT -6)   
Hey there,

My mom just had an emergency illeostomy like three weeks ago and we have had to bring her to the ER on two ocassions already when her blood pressure dropped so low that we couldn't get a reading afetr she stood up (postural hypotension). It appears both times she was dehydrated. She has been drinking a great deal of fluids when home but after about a week she seems to fall behind and needs IV. I am worried because she does have a weakened heart. Anyone have experiences like this? Can we expect them to subside eventually? Thanks so much

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 7/21/2009 8:13 PM (GMT -6)   
is her output really fast?
she needs to probably double her fluid intake from what she was getting before the surgery, esp so soon out from the surgery.
It may help to have her eat some foods that will thicken it up and slow it down some, like bananas or potatos, or to take some immodium.
Its more common for dehydration at first until the small intestine gets used to doing the large intestines work.
hope she gets better

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 7/21/2009 9:18 PM (GMT -6)   

Encourage your mom to drink bouillon and salty soups.  Adding more salt to her diet by way of salty soups and snacks will help her better retain fluids.



dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 7/21/2009 9:56 PM (GMT -6)   

I've had ileo since Aug. 07. Always tired, lightheaded, and not much hunger. I drink 2 and a half quarts of liquid per day. Are these symptoms of low salt or low electrolytes in general? As well as absorbing water the colon's job is to absorb electrolytes. My elec's are always fine on blood work but can they fluctuate during the day? Did your mom have these similar symptoms? Or if not what were her symptoms? Sincerely, esoR

Regular Member

Date Joined Jul 2006
Total Posts : 361
   Posted 7/21/2009 10:15 PM (GMT -6)   

Chocolate is the thing that give the most energy and quickly.

I hope this help.

-IBS induced by NSAID
-IBS-A,C with meteorism(trapped gas) and pubic burning-

Regular Member

Date Joined Oct 2005
Total Posts : 291
   Posted 7/22/2009 8:02 AM (GMT -6)   
When I had my ileostomy I went into the hospital after 2 weeks for dehydration. Try to avoid caffinee initially. Until the small intestine gets used to doing things just try to avoid it.
Another thing is ... like everyone said drink LOTS of fluids and salt helps. I find what helps me the most now is I drink Vitalyte and I'm set for the day. It is some really good stuff and I got it on Amazon ...

She can drink Powerade as well but it has in a lot of sugars, I found I put on a lot of weight when I was pounding down the Powerade ...

goodluck and let us know how she does ..

God Bless.
Diagnosed with Ulcerative Colitis - 1998
Failed, Azathioprene, Homeopathic, Ayurvedic, Remicade, Humira treatment
Steroid dependent - 2009

Temp ileostomy - April 7th 2009 (4 days)
Dehydration - April 24th 2009 (2 days)
Fluid around J Pouch and high fever - May 11th 2009 (4 days)
Takedown surgery - June 3rd 2009

Follow my progress on twitter:

Regular Member

Date Joined Aug 2008
Total Posts : 470
   Posted 7/22/2009 6:39 PM (GMT -6)   


You can have your mom drink coconut water also; it is very good for electrolytes and it's natural so it does'nt have the sugar like gatorade or powerade.  You can get it at Wegman's in the Health Food section or at a Health Food Store; it comes in a container like a juice box.  I have found the ZICO brand to taste the best.

I wish your Mom the best,


spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
Am now down from 17 meds a day to 8 and VERY healthy:)
There's always hope and things will get better :)

Liza D
Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 7/22/2009 10:13 PM (GMT -6)   
When I feel dehydration coming on I do only liquids for the day. It slows down my output and makes me feel better.

My doc said anytime I have a really liquidy empty I have to drink a whole glass of water right after- just to keep me on track with my fluids.

Good luck. Hope you feel better.
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

Check out my blog:

Regular Member

Date Joined Mar 2009
Total Posts : 22
   Posted 7/23/2009 10:46 AM (GMT -6)   
What are the signs of dehydration with a new ileostomy?
Dx in 2001 with UC. treated with asocol, prednisone, and rowasa. Cleared up with no problems until 2007. Flared for 2 years. Used colozol and prednisone continually while adding imuran, 6MP, rowasa. None worked. Remicade was my next option. Decided against it and had a total collectomy on June 22. Planned j pouch in September.

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 7/23/2009 4:19 PM (GMT -6)   
light headedness, hard to breath, general icky feeling, sometimes the output will drasctiaclly slow, sometimes not, not peeing much, or dark pee, feeling nasueas (i never spell that right!) if you think you are getting dehydrated, just drink drink drink!

Regular Member

Date Joined Jul 2006
Total Posts : 361
   Posted 7/23/2009 4:51 PM (GMT -6)   
windows63 said...
What are the signs of dehydration with a new ileostomy?

How about weak legs?
I think it is the first sign.
-IBS induced by NSAID
-IBS-A,C with meteorism(trapped gas) and pubic burning-

New Member

Date Joined Jul 2009
Total Posts : 3
   Posted 7/23/2009 6:39 PM (GMT -6)   
Hey Puffytail!

I've had my ileostomy since March and have the same issues. I also have issues keeping my weight stable. 5'8 and 135...When I drop weight rapidly - even 5lbs - it makes it harder to keep my bp up. Increasing sodium and fluids does help but it just wasn't enough for me. I also take a prescription Florinef - otherwise I'm blacking out everytime I stand up.

Best of luck to your mom!

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 7/23/2009 9:31 PM (GMT -6)   
yes weak legs too

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 7/24/2009 11:50 AM (GMT -6)   
Hi i too suffer from dyhdration had resection done in jan and given temp stoma  have been into hospital quite a few times  with dehydration and have IV fluids given the signs i get is start to feel breathless,tired,and faint when i stand up my heart beats really fast and blood pressure goes really low i get cramp in my feet and hands. i was told to make up isotonic drinks which is 200ml  sugar free fruit squash (fruit cordial ) TO 800ml water and add 1 teaspoon of salt  and sip this throughout the day this advice was given by my dietician the recommended amount of fluids is 2 litres a day. i  normally make the other litre up with  normal drinks tea, fuit juice or volvic flavoured water i think it helps maybe your mum could give it ago  hope this helps Bev x 
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma. Asacol, Flagyl, B12 shots,iron syrup,loperimide, Sertraline 50mg (for Anxiety)

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