I am sorry to hear about
your suffering. Well even though ileostomy and colectomy has proved to be a boon for most of the patients with UC, but a few of us do not get the intended results. It may be because of our prolonged use of steroids or other post operative complications. But you should not loose heart. The things would definitely be better. Have a strong will power. Keep yourself busy. I have the worst kind of adhesions, incisional hernia, other complications, associated with my surgery, but I try to keep myself busy.
So far as infection / burning under the wafer is concerned, it may be skin infection. I had it for over 4 months. Tell you stoma nurse to change the appliance brand. At times one gets allergic to a particular adhesive used in the appliance. They may also put you on to a prednisolone for a week or so. My bag would not last for more than half an hour and would leak because of infection at the wafer site.
Well take care. Don't be disheartened. Once you because strong willed, nothing bad can happen to you. My concept is that so long my life line is there, nothing bad can happen. It he has put me to it, he will pull me through it.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."