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Jan Heath
New Member

Date Joined Jul 2009
Total Posts : 6
   Posted 7/26/2009 9:16 AM (GMT -6)   
 I am Jan and now have an illestomy April 09..due to taking 22" out of my colon and rettached. After going home from surgery to find out the colon came apart where attached back.
I had to have emergency surgery to clean up the infections that came with pertintis.  Just got off antibotics last week...I will be having a reversal in the spring...however, my Stoma size has varied from 22mm and now around 32mm. It bulges out in the bag now and can been seen when clothed. I am concerned that I have done something wrong and need advise on what to do. I read that 1" high is good.... The stoma makes spitting sounds and has no consistence with waste. Can someone help me out with advise or support in this matter. I go into pantic mode when comes time to change the bag....

Regular Member

Date Joined Oct 2008
Total Posts : 262
   Posted 7/26/2009 9:26 AM (GMT -6)   
Hi Jan!  {{hugs}}...I really can't help you with any info/advice...I only had my ileostomy for 6 mnths and was reversed in March...someone else will be along soon to help you.  This Forum is an amazing place where you will find super great people with a wealth of knowledge and compassion...I'm happy you found it!!!.....Cheryl

Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 Ileostomy Reversal March 9/09

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 7/26/2009 2:36 PM (GMT -6)   
well its not uncommon for it to change size. Im not sure what you mean about it showing through your clothes though.

As for the spitting sounds thats just gas at least most likely and the consistency of output depends on what you eat. So i dont know how to answer that, i mean mine changes all the time.

I know that didnt help much im sorry

Jan Heath
New Member

Date Joined Jul 2009
Total Posts : 6
   Posted 7/26/2009 5:26 PM (GMT -6)   
Thanks, that makes me feel better....
Well,  I can see the outline of the stoma because it is touching the top of the pouch..I changed today was larger in size. Looked like a mushroom with one side much larger than the other...

Regular Member

Date Joined Jun 2007
Total Posts : 303
   Posted 7/26/2009 6:02 PM (GMT -6)   
I have had a stoma for 2 years, and it changes sizes from time to time. The sounds that the illeostomy make should be considered a good sign, in my opinion. You know it is working. Whenever the sounds stop and nothing is being excreted into the bag is when you should get concerned. Having a take down in the spring is something to look forward to. :)
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