anyone on disability with an ileostomy or j pouch?

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mikeman
Regular Member


Date Joined Jul 2009
Total Posts : 66
   Posted 7/30/2009 4:35 PM (GMT -7)   
has anyone filed for disability with either the social security administration, or VA (if you are a veteran of course)?
My situation is more than just my surgery which normally people can still work and remain active. It's all the above of surgeries, anxiety, depression and other ailments I struggle with.

please post if you found your job to be too demanding and too stressful on your health. I would like to hear from you.


Sorry Mikeman, please limit your signature to 10 lines or less (incl blank lines) as per forum rules. Thanks... Shaz

Post Edited By Moderator (Shaz032) : 7/31/2009 9:53:32 AM (GMT-6)


taurus
Regular Member


Date Joined Jul 2007
Total Posts : 65
   Posted 7/30/2009 5:48 PM (GMT -7)   
 I am 32 years old with Hirschsprung's Disease. I ws diagnosed when I was 4 years old. Have had 21 operations. Depending on the results of the CT Scan I had a couple days ago, it will soon be operation number 22. I have a J Pouch now. Had my last operation a couple years ago. It was a subtotal colectomy/ J Pouch/ileostomy. Had the ileostomy reversed about a year and a half ago. But now I am back to having major problems with constipation.
 
I have spent about 80% of my life in the hospital. The nurses told my Mom when I was a child that she should file disability. But she didn't. It wasn't until I was about 26 that I filed. Got turned down and appealed the decision. Went before the judge and got my reward letter about 6 months later. So I have been on disability about two and a half years. It was an almost 4 year process from the time I filed to the time I got accepted.
 
What won my case is my OVERALL battle. My lawyers presented ALL my medical records from the age of 4 all the way to the present. They were able to prove that my condition was a lifelong battle that not only affected work, but earlier when I was a kid I had a very poor school attendence record. That's because when I get sick, I stay sick for years. Then I have a time when I'm well. Then it starts all over again. It's almost impossible to hold down a job when you can't commit to actually being there. Attendence is very important to maintaining any job. They also looked at my erratic work history. They also had a "work expert" at my hearing and after listening to my testimony, agreed I couldn't hold down a job.
 
If you file, good luck and HAVE PATIENCE. It's a long process.

mikeman
Regular Member


Date Joined Jul 2009
Total Posts : 66
   Posted 7/30/2009 7:19 PM (GMT -7)   
wow...4 years? man, bringing in the so called experts to interrogate you...sounds like you've got not only a life long battle with your health but it sure looks like you need to continue to fight with them just to keep your benefits. thanks for sharing.

Sorry Mikeman, please limit your signature to 10 lines or less (incl blank lines) as per forum rules. Thanks... Shaz

Post Edited By Moderator (Shaz032) : 7/31/2009 9:54:08 AM (GMT-6)


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 7/31/2009 6:19 PM (GMT -7)   
I applied for SSI it took 4 times and the 4th time we appealed (sp) had a hearing and then they approved it :0) the judge made me cry though :0(
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!
"Don't worry about failure, worry about the chances you miss when you don't even try"
 

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