Stoma position

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Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 8/1/2009 10:58 PM (GMT -6)   
So getting ready for the big surgery day, this Tues. right after our our long Canadian weekend. I went for the pre-op stuff Friday and wore the jeans that I like the most. The nurse was so nice and i changed the spot a few times as I moved around with it on. Hope I didn't drive her crazy.

She sent me home with a couple of the square things to stick on and move around and see if it worked. I put one on over the little circle she drew on and went for a three hour bike ride. I got sweaty but seemed ok. I had the bag part all rolled up but how full does it get in 3 hours? The bags she gave me are soo big, and seem to hang way down. Do they have kids sizes. I wear kids sizes in clothes sometimes so maybe can that work? Nurse didn't cover this stuff.

I think I got it right but do you guys have any suggestions or regrets about where your stoma is?

Have the bag packed and just need to survive the next two days. I know this is all good but I get teary over this still.

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 8/2/2009 10:48 AM (GMT -6)   
well for the first few weeks the bag is gonna fill up really fast esp with gas. But after everythign settles down, unless you have eaten a bunch you should be able to go about 5 hours without emptying, if you dont want much to come out, just take a few immdium and that will help also.

They do have mini bags, and if you dont have much output you may want to consider that after a few weeks. I wear my bag turned up and under my underwear that way it doesnt hang down and it gets a little support.

I dont know if you wear those spandex shorts or not when you ride, but if you dont i would consider getting one of the belly bands or a tube top to hold the bag tighter when you ride, although you will need to wait a few weeks for the incision to heal all the way. I doubt you would be going on long bike rides that soon anyway, lol.

And dont get teary, unless they are happy tears. I cant remember if you are having a perm ileo or a jpouch but either way you will be all better! WOO HOO!!!! Just keep remembering that!

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 8/3/2009 9:33 PM (GMT -6)   
Hey Trigirl!

I'm so excited for you.
I know you must be scared. That's ok. I cried a lot. But I still have no regrets.

I wear the mini bags. I asked an ostomy bag rep. once about using pediatric sizes, and they acted like that was the dumbest question. So I got the small bags, and they are fine. The bags they give you in the hospital are so big and ugly. They have much nicer ones.

I didn't get to chose where my ostomy went (either time). The nurses told me the Dr. knows where to put it, and that was that. It seems to me that most people have them in the same place, pretty much. Have you talked to your Dr. about where he's going to make it?
It's fine where it is.

You'll be happy to know that since my surgery, i've been so much more active than I've been in years. And I recently started a running program (usually, I'm NOT a runner). But I'm doing a program called couch to 5K. That will help me get in shape for a 5k in 8 weeks. When I run, I either wear the tighter shorts and it holds the bag down, or I tuck the bag inside my underwear. I don't fold it up, b/c it's a small size and it doesn't need folded. I swim regularly. My daughter and I have a season pass to a local water park. My husband and I ride bikes regularly too, and the bag doesn't affect that at all!

You're going to be sore for a while. But don't fret. In a few months, you'll be doing your triathelon training again. AND you won't have to worry about poop breaks. :)
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 8/4/2009 12:48 AM (GMT -6)   
Thank you guys for the replies. I guess I just have the pre-op jitters.

Chasblah, It's great you started that running program. That makes me encouraged. I read Ben Moon (who is a triathlete) has an ostomy. Cool. Hope to be running by next summer.

Summerstorm, the gas thing sounds ugh but I got some gas-x just like was mentioned before. Think I'm ready to go in the morning.

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 8/4/2009 10:39 AM (GMT -6)   
you gotta take the gas-x BEFORE You get the gas! It will help get rid of it if you wait until you have it, but if you take it before it will keep you from getting it. although you have already gone to the hospital and wont see this, lol.
Hope everything went well

Liza D
Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 8/6/2009 9:18 AM (GMT -6)   
I hope the surgery went well. I am happy with my placement but it took a while for me to wear jeans again. It was just so sensitive. Now, I am able to wear all my clothes from before.

Hope you are well!
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)
J-Pouch May 2009

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