Hi can anyone help, I have a loop ileostomy, which is to be reversed very soon so I went for the test to make sure the large bowel is not leaking and Oh my goodness the pain, he put a tube in my stoma, saying it has 2 holes one from the small bowel and one at the end that goes down to the large bowel, I had to remove my bag and wafer, my stoma was having a party and the nurse says " Can you stop it for a moment" well with that I thought okay I am on my own here, doctors and nurses are so ignorant about
ostomy's, when I was attending the Holman clinic for radiation, I had to explain to the cancer nurse what an ileostomy is, anyway, I said 'no I have no control, you can try yelling at it, or just pass me some cloth's so I can sort it", they move very slow and really have no idea - the doctor came in to do the test of course he didn't know anything abut ileostomy's either and had to ring my surgeon, to ask ! he came back and told me about
the 2 holes so he put the hose with the die in it in my stoma and made me turn from side to side then stand up, it all came out fine, no leaks or blocks, when I can out I had to sit on the loo for about
an hour, I was in so much pain, I replaced my wafer and bag had a bit of a wash too, and just sat there in agony, they kept coming and asking if I was going to be long, i told them not to rush me I was in a lot of pain, and I had terrible diarrhea, I finally got out of there and my husband was waiting for me, we went to get in the car and I had to go to the loo again, so we went back to the loo and I was in there for an other hour, I was in a lot of pain and had diarrhea, finally I felt okay enough to take the hours drive home, I was able to hold on all that time, when I got home, I was on the loo every 5 mins or so, I am scared they damaged my stoma, although it is working, I just wonder how and why I have diarrhea through my bottom ? it has been 24 hours and it is starting to settle down although I didn't eat yesterday and have just had something to eat now, I hope it does not come back, I wonder has anyone else experienced anything like this with this test ? I am scared my stoma is damaged.
Diagnosed June 2011 Malignant Solitary fibrous tumor, operation to remove it, Hysterectomy, resection of large bowel, ileostomy, radiation treatment, out look If I live I am okay if I don't i am not, the tumor is very rare and so they just don't know..but I am happy and well albeit with some challenges.
Post Edited (RarelySeen) : 11/10/2011 8:12:19 PM (GMT-7)