COLONIC J POUCH

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Jpharvey
New Member


Date Joined Apr 2006
Total Posts : 5
   Posted 8/13/2009 3:14 PM (GMT -7)   
After having surgery some 4 years ago for cancer I have a colonic J pouch and have had the reversal sometimes wishing that I had stayed with the pouch , as am having trouble with constant toilet visits that make's me very sore and am always feeling that I need to go , I cannot find a diet to suit me and as I realize that each person is different wondered if there was anyone out there with the same characteristics as myself and have come across any particular diet or treatment , , they tell me that they are many different types of J pouch .
I am so restricted not being able to shop any length of time without first spotting where the public toilets are or even be able to walk far without feeling uncomfortable , I realize i am not alone and any help would be appreciated .

Jacky [ Lucky lady ]

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/13/2009 5:58 PM (GMT -7)   
I don't have a j-pouch, so I don't have any experience, but have you tried www.j-pouch.org? You might find your answer there.

Jpharvey
New Member


Date Joined Apr 2006
Total Posts : 5
   Posted 8/13/2009 9:17 PM (GMT -7)   
Thank you I will try that web site , but in the meantime there might be some in the same position as myself out there so will stay posted

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 8/14/2009 1:47 AM (GMT -7)   
Hi JP
Well I have a J pouch for the last 3 1/2 years. Well, I get urgency, the moment I eat something. I feel like going to the toilet. Otherwise, I can control it for quite some time. Your post does not give any information as to when you had the reversal/take down. Normally, it takes about six to eight months for pouch adaptation, during which the number of motions comes down. Has the doctor suggested you kegel exercise to prevent urge to rush. It is very simple exercise. Something as you have to stop your pee. So far as diet is concerned, even I am looking for some one to suggest me good protein diet with less residue. Can you digest chocolates, health drinks, diet supplements, fresh fruits.
Well I am sure you would get lot of help out here on HW. In any case, you may also try out on J pouch.org.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5697
   Posted 8/14/2009 6:14 AM (GMT -7)   
How long ago was your reversal? You should be doing better than those of us with jpouches since you still have a rectum. I also advise you to visit www.j-pouch.org

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Jpharvey
New Member


Date Joined Apr 2006
Total Posts : 5
   Posted 8/14/2009 1:23 PM (GMT -7)   
My surgery was 4 years ago and I have had the reversal about 3 1/2 years now , my cancer was very low [ close to the anus ] surgeon thought at first a reversal would not be possible , I will try the www. j-pouch .org , I am still going to the toilet 8 -10 times a day and when i have to get up in the night to visit loo to urinate I have a bowel motion every time . i have not heard of the kegel exercise but will look it up , I have a Colonic J pouch which they tell me has a difference , I get so sore and unable to go far uncomfortable to walk and not able to get any exercise in , yoga . acupuncture etc would be another alternative .
Thank you all for your feedback will keep watching and taking on board your advice .

Jacky
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