My names John. I had been a semi active member on the Ulcerative Colitis forum for the past few years. Ive had Ulcerative Colitis from around the age of 21, and am now 31. Last Monday my colon wall had thinned, and ruptured. Overnight I became of member of this new club. I was released from the hospital on Monday. Ive been looking over this forum, and I know I dont need to explain how awful life was having colitis. I can already tell my life is going to be so much better. Leading up to this surgery, I spent 4 months in a nasty flare up. Now post op, I only have pain from the surgery itself, and dont have that chronic I want to die, sickly feeling.
Unfortunatley, since I was very sick, my j-pouch will have to be a 3 parter instead of 2 parter. It sounds like in a 3 part, the second step is almost as involved (if not more so) than the first. Im feeling alot better since surgery, but I'll never forget how unfun the first 5 days were. Even now is very daunting because my body had weakend for four months. So its clearly a few weeks till Im fully recovered. However, Im highly greatful. After 10 years of torture, I know in a few weeks Ill never feel that way again.
So, I have to say that the bag isnt too bad. Yes Im a grown man, and Ive cried a few times since the surgery. It sure is ugly, but my wife assures me she doesnt care-Shes a good liar :). But dealing with the bag seems pretty straight forward. However, after talking to the nurse prior to release, it sounds like there is a million different options. So I guess I have a lot to learn.
Anyways, I just wanted to introduce myself. Please let me know if you have any advice for a newcomer.
Couple question, wear do you place your bag? Aka, between the skin and your underwear, or over your underwear under your pants?
Next, I always wear a belt, but Im affraid to tighten it because the bag wont be able to drain down. How does that all work?
Thanks guys. Hope to hear from you all soon.