In search of a tube of sorts

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Lyonene
Regular Member


Date Joined Jun 2009
Total Posts : 64
   Posted 8/20/2009 6:55 PM (GMT -7)   
So far I've only done an appliance change in the mornings and have had no problems with active flow.  Right now I'm sore from tiny leakage earlier this week and need to change again.  Problem is I just had dinner so the next few hours could be interesting.
 
I'm thinking... is there something any of you use to "divert" flow from the stoma during an active change?  I'm thinking a tube similar to a toilet paper tube but maybe a bit smaller in diameter and washable.  A short piece of plumbing PVC might do but it's a bit on the thick side, I think?  Those resizable plastic tube covers that go over a shower curtain rod might work but they'd need to be worked on to get rid of any sharp edges.
 
I just want something to cover the stoma for a minute or two while my skin and then the Cavilon dries, something that touches as little peristomal skin as possible.  A "spout extender" of sorts.  If only 7-11 made wider Slurpee straws it'd be perfect!
 
Does this even make sense?    Any ideas for a washable/reusable tube?  For tonight I'll try a TP tube.
 
Heather

Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 8/20/2009 10:11 PM (GMT -7)   
That's a really interesting idea! You could have a new invention there.

For what it's worth, I now always change appliances a few hours after dinner, and now that I have my routine downpat, I am usually able to do things without too much stoma activity.

What I do is lean against my bathroom counter. I am short, 5'2", and so my stoma ends up being just a few inches above counter level. Then I fold up a wad of paper towels and rest them under my stoma. This usually catches any small drips without getting any on my skin in the process.

I'll keep watching this thread!
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for '09 to form j-pouch


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/21/2009 9:27 AM (GMT -7)   
try eating a marshmallow or two...they can stop output, for some people, long enough to change things.

Lyonene
Regular Member


Date Joined Jun 2009
Total Posts : 64
   Posted 8/22/2009 4:01 PM (GMT -7)   
Pibbin, I do the same thing with leaning against the counter. I'm 5'6" and just tall enough for it to start getting a bit awkward. lol

Ohio76, I'm diabetic so I don't eat marshmallows but thank you for the suggestion. I'm more interested in working towards finding a solution to changing any time of day, regardless of food intake, rather than eating something, having to wait X amount of time before it kicks in, and then standing there hoping it actually did kick in and doesn't mess up my dry area. Oh, the trials!

I tried the toilet paper tube and it did work perfectly. The diameter of the tube didn't matter in the long run so long as it made a "slide" away from the stoma. The toilet paper tube is not sturdy enough though -- it's too easily squished. Now I have a better idea of what to search for though.

It turns out my skin is healed up and fine, anyhow. The soreness around the stoma is something else entirely. I went to see the ET and she's stumped. Step 2 of 3 is in 9 days so I'm going to suck it up and leave it for now -- I'll have a new stoma anyhow.

For now, I need a browse down the aisles of Home Depot in search of the perfect tube. I can't believe there isn't already a product out there.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/22/2009 4:48 PM (GMT -7)   
well thats an interesting concept.
I dont think i could stand to have that cardboard around it i cant stand teh feel of cardboard, lol.
But its a good idea, let us know how it works out
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