kind of worried about symptoms

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/24/2009 10:12 AM (GMT -7)   
Ok
Since my surgeries, I've been feeling pretty good and happy i did this.
Except for the last couple of weeks. I've been having some nausea and pain in my abdomen. I can actually feel my gut moving. And it's uncomfortable. and the movement makes me nauseous. I can't relate it to any time of day or with anything I eat. Then at times, I'll have this extreme hunger feeling. Like i'm starving myself (i'm not pregnant).
After I eat, I'll feel soo bloated. and i won't be able to eat much without feeling full.
 
I'm worried that I have some stricturing from scar tissue.
I go to see the Dr. 9/3.
 
Any other thoughts? 
 
I just feel like I'm a mess.


Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


XtremeMisery
Veteran Member


Date Joined Sep 2007
Total Posts : 687
   Posted 8/24/2009 10:28 AM (GMT -7)   

I feel how you feel and it has only been recently....I did not know what was going on and still do not. I would definately ask your surgeon. I am not sure when I see mine again, but since D/C I had not been sick after meals until this past saturday and I have thrown up six meals. My stomach gets all bloated and full and then I feel nauseated. I have pain directly behind my inscision. I was thinking it was adhesions as well.....So I think my dear, that you should definately call before your appt and see what your doc thinks.

I need your opinion....

I am possibly having a reversal and reconnection if anastamosis. I am worried the 2 '' of colon I have left and adhesions will cause me issues in the future. I think it would be better to just open me back up (i think they try and go through stoma holw if possible) and clean up scar tissue and remove whats rest of colon. This was the only section I could not get barium out of either on the defecography. My whole rectum emptied, just a little left in remaining colon is what it said. ????? Do you think this is risking too much or am I risking too much by not doing it and potentially having an obstruction (Cleveland said I am at great risk) in the future and ending with another ileostomy??

Hope you feel better sweetie....wish i could make it better.

Lizzie


Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia (Anismus)
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 with abdominal abscess. Released 4/24
Cleveland Clinic twice for 3/4th referral. Possible reversal pending defecography July 31 in Cleveland.
 
"The Greatest Healing Therapy is Friendship and Love"


Roliie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 8/24/2009 1:16 PM (GMT -7)   
What you describe sounds like what my husband describes to me. He has been struggling with abdominal abscess and collection of infection since his surgery last Nov. When the collection is not draining he gets the feeling you describe. Also his muscles were not attached after surgery due to complications with sepis and infection so he said he gets that feeling on things moving thru his gut. It is a weired time.

question though for Casblah, in an earlier post of mine you replied that you had abscess complication for a long while after surgery, you said the problem was finally resolved with a second operation. Would you be willing to share your experience. We are facing that second surgery to explore and see if they can find the cause of the continued drainage and infection. thanks

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 8/24/2009 6:10 PM (GMT -7)   
sorry you are all having such problems...I would definitely see your docs regarding the vomiting. That is usually a sign that things cannot move through your system...waiting can allow the problem(s) to cause more issues. Better safe than sorry!!

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/24/2009 8:04 PM (GMT -7)   
I'm not vomiting. I just feel very nauseated. It's a really intense, awful feeling.

I just had a CT scan a couple of weeks ago and although they didn't make me drink contrast (only IV iodine), I think they would've seen abscesses....? I think.

Lizzie,
I hope I can help you, but I don't have much experience in what you're dealing with.
Let me make sure I understand. You are going to have a reversal, but you have adhesions in the only 2" on colon you have left? That's not very much colon to have adhesions. Bummer. Won't they just remove it anyway if you have a reversal? I would imagine it would be hard to do it all through your ostomy hole only...? I would think they'd need other access to abdomen.
I would definitely go the surgery route instead of leaving everything the way it is (is that what you're asking my opinion-if i'd have surgery or not?) I would think if you left the adhesions/scar tissue/strictures alone, you'll always be battling with obstruction issues.
I know it's going to suck having another surgery, but dealing with blockages would be worse. And you may be facing emergency surgeries too. Plus, the reversal may work well. Then you'd could be done with it all! I hope i've helped.

Roliie,
I would be happy to share my experiences with you again. Would it be possible to e-mail me? If not, I'll write everything here. It's just that these poor people have read it a few times and i'm sure are bored with it. You can get my e-mail through my profile.
I'm sorry your husband is having such a hard time. I'll help any way I can.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Roliie
Regular Member


Date Joined May 2009
Total Posts : 33
   Posted 8/25/2009 8:30 AM (GMT -7)   
Chasblah is your temp normal, what is another indication of abscess.

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 8/25/2009 8:30 PM (GMT -7)   
temps normal. otherwise i feel great. And when i'm in between bouts, I feel perfect. I took an antacid this a.m. to see if that would help. So far, i actually feel even more nauseated.
When I'm sitting hunched up, I'm the most comfortable. And sometimes when i'm standing, i feel a 'pulling' sensation on my stomach, or at least at the top of my abdomen. And that pain will even radiate into my chest. It's embarasing when i'm at work b/c i'll walk hunched up.
I really don't think it's life threatening. When i've had stuff going on, I just knew it was bad. I feel the worst case scenario (and it sux, don't get me wrong) is that I have crohns disease after all (instead of u/c) and now it's going to flare up. OR another worst case scenario is scar tissue binding and pulling and twisting and causing strictures. Best case scenario, acid reflux.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

Post Edited (Chasblah) : 8/25/2009 9:39:39 PM (GMT-6)

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, November 23, 2017 10:04 AM (GMT -7)
There are a total of 2,897,189 posts in 317,988 threads.
View Active Threads


Who's Online
This forum has 157558 registered members. Please welcome our newest member, Pumpkinpatch1.
292 Guest(s), 6 Registered Member(s) are currently online.  Details
mattamx, mikeb2308, Rikky1, Bohemond, Pumpkinpatch1, Fairwind


About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow HealingWell.com on Facebook Follow HealingWell.com on Twitter Follow HealingWell.com on Pinterest
©1996-2017 HealingWell.com LLC  All Rights Reserved.