Thanks for all your replies.....
This is what I do when applying my bag. I shower dry off really well (usually wait at least 10 min before putting bad on). I use a convatec convexity two piece durahesive. The hole is very small and you roll it back to fit your stoma size. I do and before putting it on I use an eakin seal and I even try and put extra eakin seal towards the bottom where I am getting leaking out of the lower loop where my skin brakdown is bad. If the skin is I hold the wafer for 20 secondsopen and weeping I apply some powder. This issue is right away, even though though I dolf the wafer down (which pushes my stoma out) for at least 15-20 seconds as soon as I let go my stoma falls below the hold I have rolled back (which was the size of my wafer. I think this is because it is so short, points down, and retracts. I have tried a one piece (marlen) which was suggested by my stoma nurse and is suppposed to work really wekk and is very flexible, but this too did not work. I have tried the convexity by hollister and two other companies. I have visted the stoma nurses four times, they have taken pictures and said they do not usually see a stoma like mine. It was normal and 1 1/2'' at first, but as it shrunk it started retracting. When I lay down the stoma actually goes beneath my skin level and when I I standing up its just over flush with my skin.
So this is my process....i think I have been doing everything I can, but you guys are the experts. My reversal is mosy likely if it happens in mid- to late october, but I do not oknow if I can wait this long. My insurance covers my monthly appliances of 20 bags, ad 10 wafers.....my issue is i use about minimum of 8 wafers a week!!!! So I keep getting bills for the re-orders. Anyways....hope this helps better explain.
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia (Anismus)
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 with abdominal abscess. Released 4/24
Cleveland Clinic twice for 3/4th referral. Possible reversal pending defecography July 31 in Cleveland.
"The Greatest Healing Therapy is Friendship and Love"