I sometimes get itchy under the flange, but that's usually because there's a small leak and it's time to change. Once I change it, the itch goes away. Two skin products that have really helped me are Nystatin Powder, which is an anti-fungal prescribed by your doctor, and Calmoseptine Ointment, which is a skin protectant. Both go on the skin around the stoma before applying the flange. You can learn more about
Calmoseptine at www.calmoseptineointment.com
The jejunostomy I had was temporary (on the left side of my belly), but I have a permanent ileostomy (on the right side) due to Crohn's Disease. Everything is great with me now. I'm healthy and happy, and my self confidence is very good. My husband and family and friends have helped a lot, since they are all so accepting and supportive. They saw me sick with Crohn's for 7 years and are glad that I'm healthy now, so my ileostomy has been a very positive thing in my life.
It's good that you can eat and drink, as well as receive nutrition through IV. Eating is drinking is just plain enjoyable and makes life more fun. It's good, though, that your jejunostomy is reversible, because it is physically draining to not absorb nutrients and fluids the normal way by mouth.
We have a web site where we post photos. If you want to take a look, it's www.photobucket.com The user name is crohnsdisease and the password is 6mp3asa
Please feel free to upload some photos of yourself, too!
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.