New member - just saying HI and Thanks!

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Regular Member

Date Joined Aug 2009
Total Posts : 27
   Posted 8/30/2009 3:54 PM (GMT -6)   
Hello all,
I am an unwilling member of the ostomates.  I say that because I thought I was having a relatively routine hysterectomy (June 09) to eradicate a tiny spot of cervical cancer and instead ended up with a temp ileostomy.  Why?  I ended up with an absess and massive infection due to either a nicked bowel or an inevitable cut due to the removal of adhesions.  I'll never know which.  I spent a month in the hospital all in all.  With the infection things were getting serious so the ileo was the only way to shut down the infection.   I'll tell you my ileo learning curve has been steep and frustrating.  It's the only thing that has had me so frustrated I've thrown things at the wall !! That has not happened since a few teenage tantrums !! (I'm 46).
At this point I have been told I will have reversal surgery in a few months.  I'll be convinced when it's actually done. 
I will be posting questions, adding some of what I have learned if I think it may help someone, and will be grateful for the forum for the odd venting session and pity party plea.   I am stepping up from trolling all your posts and advice to contributing and joining you.  You have been more help so far than any of my doctors or nurses.  No disrespect to the medical community; it's one of the things you have to experience to be able to really speak to... agree?
Connie (Toronto)

Regular Member

Date Joined Aug 2008
Total Posts : 470
   Posted 8/30/2009 5:57 PM (GMT -6)   

Hi Connie,

You have been through such a horrific ordeal for something you never expected and I'm so sorry that you have experienced this. The medical community can be extremely frustrating but there are some excellent drs, nurses, techs, etc. that will do ANYTHING for their patients as some of us have found out; don't give up on them, they are out there.  Don't give up hope on your reversal, it will happen; things take time and your body needs to be ready.

When you are ready there are many wonderful people on here that will "walk" you through the whole procedure as well as all of us who will let you vent at ANY time.  Many of us have been through difficult times so we know what you are going through.

Hang in there and know that it WILL get better:)


spleen/appendix/gall bladder-removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/bunion & 2 neuroma surgeries/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08/ c difficile
Am now down from 17 meds a day to 8 and VERY healthy:)
There's always hope and things will get better :)

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 8/31/2009 8:29 PM (GMT -6)   
Ditto to what Judy said so beautifully. I haven't been able to spend a lot of time on here lately but will try to do better. You have a venting place to come. We may not have experienced your "exact" circumstances but for one thing we have experienced the outcome, an ostomy. So, let me just say welcome and thank you for lurking and reading this forum. It has helped me as well in the past and I have made some wonderful friends.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
   Happy SILVER Anniversary to me!

Veteran Member

Date Joined Jun 2005
Total Posts : 981
   Posted 8/31/2009 10:37 PM (GMT -6)   
Hi Connie,
Im sorry for everything that you have been through. I hope everything works out for you. We are all here for you. Take care and vent away

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 9/1/2009 3:21 PM (GMT -6)   

Welcome to our little corner of the world where we vent, share advice (and a few poop stories), and best of all... make new friends. I'm also a member of the not-so-elite Ostomate Club (due to Crohn's Disease) and mine is permanent. So, hey, at least yours is reversible!! smilewinkgrin

Actually, for me, having an ileostomy has been a real blessing, because I'm not sick anymore. I'm just happy that there was a solution to my problem.

However, I can only imagine how shocked you were to wake up with one when you weren't even sick! I'm so sorry. Please feel free to vent to us anytime. We are here to listen and help, if we can.

Cecilia (in Florida) cool
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 9/2/2009 10:41 AM (GMT -6)   
Connie--sorry to hear of your situation...I am also like Cecilia, with a permanent ostomy, due to Crohn's. No regrets for me since I have a better life now...but I ASKED for mine!

We are here, and you'll find at weird hours, so vent away. Keep us posted on your progress, too!

...I bet you can guess where I'm from!!
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