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Veteran Member

Date Joined Sep 2007
Total Posts : 687
   Posted 9/4/2009 1:58 PM (GMT -7)   
So I saw my surgeon this afternoon and they moved my surgery date up d/t my ever shrinkin and retracted stoma and skin breakdown. I am scheduled for the reversal Sept. 28.....24 days. I am sick with nerves and hope this is the last surgery ever!!!!
Thanks for all your support. I am sure I will need over the next 3 weeks as I scare myself away from doing this....
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Four abdominal abscesses- Feb 2008
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia (Anismus)
Admitted with Small Bowel Obsruction April 4, 2009 and eremgency ileostomy 4/13
Loop ileostomy April 13, 2009 with abdominal abscess. Released 4/24
Cleveland Clinic twice for 3/4th referral. Possible reversal pending defecography July 31 in Cleveland.
"The Greatest Healing Therapy is Friendship and Love"

Regular Member

Date Joined Jun 2009
Total Posts : 213
   Posted 9/4/2009 2:12 PM (GMT -7)   
Lizzie I am so glad you have a date soon. I am sure you are scared but I am sure the surgery will be worth it and you will feel better. We will pray that everything goes well and it will be your last surgery! Try not to let your nerves get the better of you. I am trying real hard not to let mine get the best of me but I know it is hard sometimes.

Regular Member

Date Joined Jan 2008
Total Posts : 381
   Posted 9/4/2009 5:36 PM (GMT -7)   
Lizzie-Wow! I don't blame you for being nervous----
I am awaiting my reversal date. I just had my pouchogram yesterday and seeing the surgeon Wednesday for results. I am hoping he will set the date. I have also had really bad skin issues- fighting a serious fungal rash for past 3 weeks. So even though I am nervous, I am anxious to move on to next step (hopefully last step) of recovery.
I wish you the best...
Jackie, 43
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- TBA

Regular Member

Date Joined Apr 2005
Total Posts : 269
   Posted 9/4/2009 6:58 PM (GMT -7)   
Congrats Lizzie! You're going to do great! I had the nerves's got to be normal!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006
Proctocolectomy and J-pouch formed with loop ileostomy April 2009
Reversal June 2009

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 9/4/2009 8:41 PM (GMT -7)   
Hey Lizzie!

I hope this will be your last surgery EVER! and that you'll go the rest of your long life with your insides staying inside.
Good Luck. We're all praying for you.
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

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