I feel for you....this has been an all to common situation for me. The burning and itching is so horrible. I have changed mine three times today and like your, mine is retracted below skin level (esp when laying down). The convex wafer would be your nect step. I have tried four different kind, but noine have been successful for me. Have you visited with your ostomy nurses or tried an ostomy belt. The last brand they tried was a Marlen and it heloed, but I still have leaking every 4 hrs or less. I goes as long as I can without changing, but its gets to the point where my skin is so excoriated I have no choice. I have been going through a month supplies in 2 weeks. I just found out Fri they are moving my reversal forward for this reason. I do not know if this is an option for you, but my surgeon does not think my skin can go until November.
I hope you can find something that works. You definately need to try convexity. Wishing you well.
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia (Anismus)
Admitted with Small Bowel Obstruction April 4, 2009 and emergency ileostomy 4/13
Re-admitted with abdominal abscess. Released 4/24
Cleveland Clinic twice for 3/4th referral. Anismus undetected (no medical explanation)
Retracted stoma-infection/skin breakdown.
Reversal scheduled- Sept 28, 2009
"The Greatest Healing Therapy is Friendship and Love"