Hi everyone! It's been awhile since I posted here, but I drop in regularly to read. I may post this on jpouch.org also, but this is the deal- I finally went to see a surgeon about
repairing the RV fistula I've had for about
2 years now. We discussed the available treatment options (not many!) & the success rates (quite low!), & then she said something that blew me away- she told me I was not a candidate for a jpouch becasue of the fistula, that any reputable CR surgeon would never even think of doing a jpouch on me because of the presence of the fistula. That to them, signifies Crohns. But then I go over to jpouch.org & read about
tons of women with RV fistulas & jpouches- what gives? Are the fistulas developing after the pouch is made? Does this mean they really had Crohns all the time? Some of the women get their pouches removed, & still have the fistulas. I'm just confused- in any of your dealings with surgeons here, did you ever hear this, that if you have a fistula you're automatically assumed not to be a candidate for a jpouch?
diagnosed with UC '02
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07