Hello there...I am one of the not so lucky ones...My colon perforated in Feb 07 20 years after my CD Dx. I had emergency surgery, 1 week later had an emergency iliostomy due to megacolon. I had multiple complications even with that surgery with wound infections (no prep prior to Sx will do that) and the stoma area never healed properly so I had a continuing internal abscess so I had an onstomy, a wound vac and a drain....
I had my ostomey revered in July 07. Again another wound infection but this did not require near as much equipment as the prior. A month later or so my joints began flaring terribly again (they do that prior to a CD flare for me) to the point I was unable to walk unless I was on Prednisone. I was on Pentasa as a preventative at the time to prevent recurrance. I saw my GI I cannot recall if the humira was started pre-fistula or post sorry... In about
a week I had an enterocutaneous (sp?) fistula appear next to my belly button. I was started on Humira injections every other week. I noticed that on the "off week" the fistula drainage hole became larger and more active than weeks that I used the injection. After fighting with my insurance I began the meds every week instead however it wasnt enough to reverse the problem. I went back on TPN to see if resting my gut would help...but sadlt it wasnt enough. I ended up with a PICC line infection on top of that so they had to pull that and I had to get meds for that which made my have to stop the humira...visious circle. I had to have another resection (this I was given a prep for the ostomy reversal I was just limited to clears the day before if I recall since things moved so rapidly thought me).
I had the Sx done in Jan 08 to fix the fistula. For a few weeks it was no meds (Humira) I had megacolon AGAIN...NG tube blah blah...and due to me not being able to get back on the humira I was in fact flaring again (it moved to my rectum and a different
location in my ilium...as per the scope as of Oct 31 2008. My Dr did a CRP to check inflamation levels when I was on the Humira 2 times a month as opposed to 1 time a week and they were elevated but when I got back on the 1 time per week things settled a bit.
I am an odd ball out though I mean look at all of the complications I had along the way. Most people have a long time before if ever it returns as long as their GI keeps a close eye on test results and keeps on top of things.
I wish you the best of luck and will keep you in my thoughts and prayers that you wont get the bad luck I did...I still blame it on being born on Fri the 13th...lol
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987