Any one had remove entire colon, I urgently need the experiences, severe diaherra ?

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smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 9/28/2009 5:46 PM (GMT -7)   
I Have severe constipation, thinking to remove colon, but I heard someone diaherra 30 times / day, and they want suicide. Can you tell me your experience. I can't stand it , I suffer every day. And really hope can find some way to release it.

I am a chinese women living in calgary with my son.
Thank you thank you thank you

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 9/28/2009 7:16 PM (GMT -7)   
Smarty,

I had the surgery 6 months ago. The first 6-8 weeks I went 15-20 times a day, but it was wonderful...so much better than not being able to go. I was always able to make it to the bathroom. After 8 weeks, things changed as my small intestine learned to take over for the colon. Actually I still have more trouble going than I do loose stools. Also, there are good drugs to help slow down the bm's if they are a problem. I wouldn't be too afraid of surgery. I honestly think you'll feel better.

Good luck,

Janie

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 9/29/2009 2:12 AM (GMT -7)   
Janiepain said...
Smarty,

I had the surgery 6 months ago. The first 6-8 weeks I went 15-20 times a day, but it was wonderful...so much better than not being able to go. I was always able to make it to the bathroom. After 8 weeks, things changed as my small intestine learned to take over for the colon. Actually I still have more trouble going than I do loose stools. Also, there are good drugs to help slow down the bm's if they are a problem. I wouldn't be too afraid of surgery. I honestly think you'll feel better.

Good luck,

Janie



Dear Janie
Thank you thank you thank you !
It is 3 am in calgary, I still couldn't sleep because of the discomfort. (every night I still couldn't sleep) In the upper part of this year, I only went to bm a few times in 5 months, once recovered in a short period, now constipate again, I really couldn't stand it. Thank you for your information, I decide to come back Hong Kong(my home town) to find doctors.

damagedgoods41
Regular Member


Date Joined Sep 2009
Total Posts : 377
   Posted 10/3/2009 4:07 AM (GMT -7)   
turn  hi smarty how are you?? it sounds like yoiur at your wit's end. well my advise to you is having the surgery could make ur life so much better, as in ur quality of life ie- not being constipated all the time. also when u have the colon rremoved it is very normal to have very loose stools and some more than others. please dont let one story put u off as it doesn't mean it's going to happen to you. please try and be positive regarding ur situation and u may find this will be very helpful.... stay focused and chin up ok. hope this help's u a little bit. take care of u!!!!!!  rose-bud40  smilewinkgrin
diagnosed with C in 2001.
colorectal anastamosis 2001.
surgery went horribly wrong,swab left inside,emergency surgery 2001.
total colectomy & ileostomy 2001.
surgical complication's-abcess,more surgery 2001.
more complication's-stitches come apart inside and ended up having more surgery and blood transfusion. 2001.
infection at lap site,another abcess. 2001.
i spent 12mths in Cabrini Private Hospital in Melbourne.
THE ONLY MED'S I AM ON ARE AVANZA FOR CHRONIC DEPRESSION............


sarmiento
New Member


Date Joined Apr 2009
Total Posts : 18
   Posted 10/3/2009 3:29 PM (GMT -7)   
I have IBS-c with a lot of pain, and consider also colectomy. Smarty, there are some common concerns from doctors about colectmy for functional disease like IBS or constipation.
Sometimes a patient may develop pain after surgery.

Jeaniepain, how was your painlevel after surgery in hospital? Is taking the colon out not a stress for the whole body?

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 10/4/2009 3:18 PM (GMT -7)   
rose-bud40 said...
[img]/community/emoticons/turn.gif[/img] hi smarty how are you?? it sounds like yoiur at your wit's end. well my advise to you is having the surgery could make ur life so much better, as in ur quality of life ie- not being constipated all the time. also when u have the colon rremoved it is very normal to have very loose stools and some more than others. please dont let one story put u off as it doesn't mean it's going to happen to you. please try and be positive regarding ur situation and u may find this will be very helpful.... stay focused and chin up ok. hope this help's u a little bit. take care of u!!!!!! rose-bud40 [img]/community/emoticons/smilewinkgrin.gif[/img]



Hi Rose-bud40

I am in a very bad situation, my brother not allow me to come back Hong Kong(my home town) to do surgery, he said very dangerous and have severe diaherra. I check the air ticket tomoorrow and arrange money, in Hong Kong the surgery at least cost $35,000 canadian dollar except the test. I don't know how much end up, I am afraid too expensive as I can't afford it. I really couldn't stand it !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I can't concentrate to look after my son ! Now I am living in Calgary with my son, I hope I can have healthly life.

I know you have depression, what bothering you, you can talk to me. I am willing to listen to your problem.

Wish you good

Post Edited (smarty) : 10/4/2009 4:31:40 PM (GMT-6)


smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 10/4/2009 3:33 PM (GMT -7)   
sarmiento said...
I have IBS-c with a lot of pain, and consider also colectomy. Smarty, there are some common concerns from doctors about colectmy for functional disease like IBS or constipation.
Sometimes a patient may develop pain after surgery.


Sarmiento

I really couldn't stand for the constipation, I am not only 1-2 weeks, is for months no poop. I don't know what to do !


Jeaniepain, how was your painlevel after surgery in hospital? Is taking the colon out not a stress for the whole body?

Janiepain
Veteran Member


Date Joined Jan 2007
Total Posts : 662
   Posted 10/4/2009 6:00 PM (GMT -7)   
The pain in the hospital was manageable. I had good drugs the first few days. It wasn't fun, but it's not horrible. Just getting rid of a colon that doesn't work will make you feel better.

I wouldn't worry too much about loose stools. There are many things you can take for that, and if you're like me, that's not an issue at all. I did have loose stools and diarrhea for the first few weeks, but all of a sudden one day it just stopped. Now I still have some loose stools, but often still have problems going...but not nearly as bad as before and I can usually get things moving with enemas or prune juice, which never worked before. Things aren't perfect at all for me, but I have pelvic floor issues, and I'm hoping to get them worked out.

If you truly don't go to the bathroom for weeks at a time and your doctor recommends surgery, I would definitely have surgery. I know it seems scary, but once the surgery is over with, you'll be very happy, I'm sure.

Janie

Post Edited (Janiepain) : 10/4/2009 7:04:07 PM (GMT-6)


adaperl
New Member


Date Joined Oct 2009
Total Posts : 19
   Posted 10/10/2009 2:41 PM (GMT -7)   
I had a total colectomy 8 years ago. My quality of life is so much better. I still have issues but more with fighting off constipation than the runs. Be careful because its not always a cure all. After 3 years, i had scar tissue adhesions that blocked my small bowel, then a double hernia surgery due to all the times i was operated on. It is still worth it. Again, keep in mind that once your large intestine is out, the small bowel does take over and it can be affected with the same problems as the large. I had a colostomy for 4 months in between surgerys and if my small bowel completly shuts down, I know its not the end of the world and I can still live a full life with a bag. No one wants that but sometimes you dont have a choice. Live with a bag or die with out it. Good luck and I just want to say I am so glad I found this site. I have never had anyone to relate to in my life these last 8 years and I feel like I am home. THANKS !!!!

Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 10/14/2009 4:10 AM (GMT -7)   
Calgary? So you mean Calgary Alberta Canada? I am in the north near Grande Prairie, AB.
It is nice to see someone closer to home here.

I had my colon removed in edmonton, at the royal alec hospital in '98. I had the bag on my side for about a yr.
I am now with j-pouch and its not going well for me -[I now have crohns.]

I go to the BM about 15-20 times a day and its not fun!!! Accidents happen frequently.

Just really think about it, surgery is not always the answer and it is very different for everyone and yes the disease can come back and effect your small bowel like it did with me.

Remember: your colon's job is to absorb all the fluid that your body intakes. And without it, whatever goes in comes out almost 5 times as fast compared to a normal person. Also, Keep in mind it depends on how much of your colon is removed. With me it was pretty much my entire colon. After surgery I weighed like 86 pounds and was thin as a rail. Having the temp. bag on my side was HELL!! and I pray I will never have to experience that again. A relationship that I was in ended because of it.

Have you tried herbal remidies? or seen a Natropath or something like that? I know of some people that have gone that route and have had much success! I wish you all the best and believe me I kinda know what U R going through only for me its the other way around - I can't get off the toilet! GOOD LUCK!
 
Sofee
praying for a good night's sleep and a happy bottom!! :o]
1998: Colitis - removal of colon, temp. ostomy 10 mths.
2000-07: disease free & doing well with j pouch.
2007-09: rectal pain & discomfort, loss of bowl control. diagnosed with Crohns March '09 currently on: Emtec, Azathioprine [Imarun] & Remicade. Med History: steroids, predizone, cipro, loperamide [imodium], gravol, previcid, cholestramine, xylocaine jelly, zinc oxide creme, etc.
 


esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 10/14/2009 8:52 PM (GMT -7)   
Smarty,

Be sure you get all the tests: Sitzmark test for transit to check colon function (sounds like you already know), but do the test anyway. Then have a defecogram to check function of anorectal angle, pelvic floor muscle control and some other stuff that test tells. Then have anorectal manometry and then there's some nerve test. With all these test results they can tell whether the issue is with the colon, rectum, anus, and or whole pelvic floor. The more information you have on the exact cause of your problem, the better a doctor can plan what is right for you. Good Luck, Rosemary
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