Any one had remove entire colon, I urgently need the experiences, severe diaherra ?

Smarty,

I had the surgery 6 months ago. The first 6-8 weeks I went 15-20 times a day, but it was wonderful...so much better than not being able to go. I was always able to make it to the bathroom. After 8 weeks, things changed as my small intestine learned to take over for the colon. Actually I still have more trouble going than I do loose stools. Also, there are good drugs to help slow down the bm's if they are a problem. I wouldn't be too afraid of surgery. I honestly think you'll feel better.

Good luck,

Janie

 hi smarty how are you?? it sounds like yoiur at your wit's end. well my advise to you is having the surgery could make ur life so much better, as in ur quality of life ie- not being constipated all the time. also when u have the colon rremoved it is very normal to have very loose stools and some more than others. please dont let one story put u off as it doesn't mean it's going to happen to you. please try and be positive regarding ur situation and u may find this will be very helpful.... stay focused and chin up ok. hope this help's u a little bit. take care of u!!!!!!  rose-bud40 

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diagnosed with C in 2001.

colorectal anastamosis 2001.

surgery went horribly wrong,swab left inside,emergency surgery 2001.

total colectomy & ileostomy 2001.

surgical complication's-abcess,more surgery 2001.

more complication's-stitches come apart inside and ended up having more surgery and blood transfusion. 2001.

infection at lap site,another abcess. 2001.

i spent 12mths in Cabrini Private Hospital in Melbourne.

THE ONLY MED'S I AM ON ARE AVANZA FOR CHRONIC DEPRESSION............

rose-bud40 said...
[img]/community/emoticons/turn.gif[/img] hi smarty how are you?? it sounds like yoiur at your wit's end. well my advise to you is having the surgery could make ur life so much better, as in ur quality of life ie- not being constipated all the time. also when u have the colon rremoved it is very normal to have very loose stools and some more than others. please dont let one story put u off as it doesn't mean it's going to happen to you. please try and be positive regarding ur situation and u may find this will be very helpful.... stay focused and chin up ok. hope this help's u a little bit. take care of u!!!!!! rose-bud40 [img]/community/emoticons/smilewinkgrin.gif[/img]

Hi Rose-bud40

I am in a very bad situation, my brother not allow me to come back Hong Kong(my home town) to do surgery, he said very dangerous and have severe diaherra. I check the air ticket tomoorrow and arrange money, in Hong Kong the surgery at least cost $35,000 canadian dollar except the test. I don't know how much end up, I am afraid too expensive as I can't afford it. I really couldn't stand it !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I can't concentrate to look after my son ! Now I am living in Calgary with my son, I hope I can have healthly life.

I know you have depression, what bothering you, you can talk to me. I am willing to listen to your problem.

Wish you good

Post Edited (smarty) : 10/4/2009 4:31:40 PM (GMT-6)

The pain in the hospital was manageable. I had good drugs the first few days. It wasn't fun, but it's not horrible. Just getting rid of a colon that doesn't work will make you feel better.

I wouldn't worry too much about loose stools. There are many things you can take for that, and if you're like me, that's not an issue at all. I did have loose stools and diarrhea for the first few weeks, but all of a sudden one day it just stopped. Now I still have some loose stools, but often still have problems going...but not nearly as bad as before and I can usually get things moving with enemas or prune juice, which never worked before. Things aren't perfect at all for me, but I have pelvic floor issues, and I'm hoping to get them worked out.

If you truly don't go to the bathroom for weeks at a time and your doctor recommends surgery, I would definitely have surgery. I know it seems scary, but once the surgery is over with, you'll be very happy, I'm sure.

Janie

Post Edited (Janiepain) : 10/4/2009 7:04:07 PM (GMT-6)

Calgary? So you mean Calgary Alberta Canada? I am in the north near Grande Prairie, AB.
It is nice to see someone closer to home here.

I had my colon removed in edmonton, at the royal alec hospital in '98. I had the bag on my side for about a yr.
I am now with j-pouch and its not going well for me -[I now have crohns.]

I go to the BM about 15-20 times a day and its not fun!!! Accidents happen frequently.

Just really think about it, surgery is not always the answer and it is very different for everyone and yes the disease can come back and effect your small bowel like it did with me.

Remember: your colon's job is to absorb all the fluid that your body intakes. And without it, whatever goes in comes out almost 5 times as fast compared to a normal person. Also, Keep in mind it depends on how much of your colon is removed. With me it was pretty much my entire colon. After surgery I weighed like 86 pounds and was thin as a rail. Having the temp. bag on my side was HELL!! and I pray I will never have to experience that again. A relationship that I was in ended because of it.

Have you tried herbal remidies? or seen a Natropath or something like that? I know of some people that have gone that route and have had much success! I wish you all the best and believe me I kinda know what U R going through only for me its the other way around - I can't get off the toilet! GOOD LUCK!

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Sofee

praying for a good night's sleep and a happy bottom!! :o]

1998: Colitis - removal of colon, temp. ostomy 10 mths.

2000-07: disease free & doing well with j pouch.

2007-09: rectal pain & discomfort, loss of bowl control. diagnosed with Crohns March '09 currently on: Emtec, Azathioprine [Imarun] & Remicade. Med History: steroids, predizone, cipro, loperamide [imodium], gravol, previcid, cholestramine, xylocaine jelly, zinc oxide creme, etc.