Well goodness, i went back and ready my typos from my last entry. I had just taken my sleeping medicine not long before!!! It was almost as bad as my entries when I was on drugs in the hospital. Anyways....I am doing ok. I have really had a week from hell. I just found out yesterday my brother and his wife are losing their baby. She is 19 weeks and the baby is full of fluid. She has to deliever on Wednesday and they live about 4 hrs away. I wish I could be there for them, but I have surgery the next day and right now she does not want to see anyone.
I did get out for some polish festivities. I am still having nausea everytime I eat anything. I have thrown up twice today after meals...I am just not sure what is going on. My belly gets distended still, big gush into bag, and then vomiting. But my test showed my small bowel was ok and they stuck their finger in my stoma and said it was not narrowed. Just nervous this may affect my recovery.
Janie, I hope you get things figured out. I feel so bad for you....dealing with someone as arrogant as your doctor sounds is just as frustrating as dealing with the disease. I wish I would have done something sooner in regards to his nurse...its so much easier now. I think you shoudl definately see another surgeon. I have seen four....and I do not regret it at all. I had to drive 5 hrs to Cleveland and it sucked, but it was worth it.
Hodaya, How are you feeling honey????
Jen, I have had pleurisy and it sucks. I am glad you are feeling better and you have to get stronger for surgery. I am praying all goes well. Thinking of you.
Jenise....I was frustrated too, but glad he was being thourough....Please keep us posted. I hope all goes well and they can decide the best way to approach all that is going on.
Judy- Thanks for always being so kind and caring so much despite your own struggles.
Hope the rest of you are doing well...welcome cyclemaniac and good to hear from you rosemary.
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia (Anismus)
Admitted with Small Bowel Obstruction April 4, 2009 and emergency ileostomy 4/13
Re-admitted with abdominal abscess. Released 4/24
Cleveland Clinic twice for 3/4th referral. Anismus undetected (no medical explanation)
Retracted stoma-infection/skin breakdown.
Reversal scheduled- Sept 28, 2009
"The Greatest Healing Therapy is Friendship and Love"