Hi all....just checking in.
Jen- I wish you well with your pre-op appt today. I know you have al your questions ready abd just as away, Its their job to inform you and for you to tell them your fears and concerns. Let us know how it goes. 5'6'' and 111 lns is so tiny to be going into surgery. I know you do not do well with solids, but you ahould be trying something like ensure to get some extra weight on you before. I know I have told you this before, but nutritionally I do not think you are strong for surgery. I lost so much weight with my firsttwo and got so weak and it was so much harder to heal. Donot think about not being able to eat after. I have minoe gastroparesis and it has gotten better with the surgeries. You maybe surprised.
Jenise- Cool pictures and no they do not look normal. I am so interested in what the final decision will be with you and what is going to happen. I just want to you scheduled for surgery so you can start feeling better.
Marisa- I feel so bad for you and for wht you are going through. When I watch my pts slip into states like your mom you feel so helpless becuase their is nothing you can do, but wait and see how her body responds. I am praying for you and your family and for peace in whatever may come of this illness. Bein a cancer nurse I become so attached to my pts and eaxh one that passes leave a little hole in my heart. I have a tatoo of angel wings on my neck and I ot this after losing my first pt and for each after they are always close t o me...my little angels. I know MRSA in such an immunocompromised stste can take a toll on you mom and right now all I can do is pray for you and her strength and for your family.
Christy-So good to hear from you and glad you seem to be doing so well. Thanks for your well wishes. I do not know whatis wrong with me, but I am sinking low again and I do not know if its fear for the future or the fact I am on pain meds and have already had to take MOM or the suergery or just the last two years. we have really bad swine flu going around in MI and i feel like crao whcih doesnt make it any easier. I d o not want to talk to anyone. I shut my blinds and just sleep or lay on the couch. My hisband told me i look pale and have lost weight, but i do not think I have, I just cannot snap out of it and I wish I could.
F1ghter- I fell sso badly for you and I feel how much pain your in....you have to have this surgery and if you have to have a bag I will be there to help you thought it. I had a hrd time, yo uknow, and I cannot lie to you, but it could give you your life back and not everyone has complications like I did. To be honest to, besides the leaking and fact of having a bag I did feel better.....I was pooping and I felt ok and for the most part you can eat and feel good. Your weight is concerning too....you girld you cannot live on not eating and before you knwo it something bad is going to happen and your not going to be string enough for surgery. You have to think electrolyte imbalances, and many more issues that arise from being nutritionqally compromised. I wa ssick before all o my surgeries and I know this is why I have had so many complications. I unsderstand the smokimg thing....right now it gets me throught the day. I love you all and care so mmuch for you and just want you to moveon with these surgeries and feel better. I want and pray for that for all of you.
Judy-Thinking of you and all that you hve going on beween the kidney and school. Praying for you and love youl. Stay string girl, you are the glue to this family and we love you.
Janie- How is everything going??? I know you and your juices, but have you figured out anything else. When is your testing again? I want the results ans tou to be in your way to CC. You need a second opinion, worried and thinking if you.
Tracy- How are you feeling honey? I know the answer to that and i wish you would to something sooner so you could start feelig better. I want this so bad for all of you. I think of all of you every day and night and talk to you more than anyone. Let me know how you are.
Conmarjo- SO good to hear from you and I wish you the best with your test. Let us know how everything goes. Praying for you!!!!
So many of you sit here in pain and not going and facing decisions and I feel horrible feeling the eay I do. I have had three surgeries and have seen the best doctors and fornow am pooping ok so what is my deal? I should be jumpimg for joy and I cannot. I feel so selfish and apologize if ihave upset any of you. I just have so much far....fear I cannot control. I just wabt this ti keeo working and the unknown if it all, the dreaded memories if the oast haunt me like no other. I di not even feel like the same person anymore....I need to be for my husband. He loves me, I love him, and we both miss me. why can I not get there???? Sorrry to complain. Again, so selfish.
Chronic Lifetime Constipation, Dx IBS-C for 7 yrs
Diagnosed Colonic Inertia-Oct 2007
Total Colectomy with ileorectal anastamosis- Jan 28, 2008
Ileus with suspected leak- Feb 1, 2008, ended with four abdomal abscessses and 2 drains
Diagnosed with small bowel Fistula- March 6 2008
Drains removed- End of March 2008
Continued Constipation- biofeedback for 3 mo Aug 2008, Dx Rectal Inertia (Anismus)
Admitted with Small Bowel Obstruction April 4, 2009 and emergency ileostomy 4/13
Re-admitted with abdominal abscess. Released 4/24
Cleveland Clinic twice for 3/4th referral. Anismus undetected (no medical explanation)
Retracted stoma-infection/skin breakdown.
Ileostomy Reversal- Oct 8, 2009. Ileus, Dehydration-Ongoing, but resolving 10-15
"The Greatest Healing Therapy is Friendship and Love"