total colectomy or not HELP HELP HELP PLEASE

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Regular Member

Date Joined Jul 2009
Total Posts : 96
   Posted 10/5/2009 1:36 AM (GMT -6)   
Hi, friends

I am a chinese women living in calgary with my son, I have severe constipation, 5 months only have a few time, and it came out very little, my doctor said don't do the surgery, I will regret. I know someone have this done have 30 times diraherra per day. How is your expereicence, how many times diaherra you have. I just talked with my brother he get mad with me, saying that doing surgery is dangerous and severe diaherra. I really very suffer, except surgery I can't think any way to solve it. However, I am very scared the bad effect, I urgently need answer to decide I do surgery or not ?

I cannot sleep every night because of the discomfort.

Please feedback to me.


Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 10/5/2009 8:22 AM (GMT -6)   
Only YOU can make the decision to have surgery or not. Any surgery is risky. Surgery comes with a list of pros and cons. You should sit down and list the pros and cons with your surgery and then decide what YOU are willing to live with.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Veteran Member

Date Joined Mar 2008
Total Posts : 624
   Posted 10/6/2009 10:33 AM (GMT -6)   
It sounds like you are NOT being taken very seriously in that you are miserable and have no quality of life - is that true??
Having my bowel removed after 10 years of hell is the best thing i did  - however i do have a temporary ileostomy.  But i would rahter have a bag for life than go back to what i was like before. 
I hope that helps.  Make sure you get a GI transit time test done to show that your bowel is not emptying properly and nothing else is wrong.  Dont listen to negative people who know  nothing about what you are experiencing every day. 
PS - you can always opt for a ileostomy if you do end up with uncontrollable diarrohea anyway!!!  I know what i would do.

Karen - 47 yrs young!
1997: Diagnosed IBS
2003: Pelvic floor repair surgery (rectocele/cystocele)
2006: STARR surgery for mucosal prolapse/Obstruction
2006: Diagnosed with slow transit constipation
2007: Sigmoid resection because of partial volvulus resulting in immediate colonic inertia
March 2009: Loop Ileostomy - awaiting reversal ..hohum..

Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 10/6/2009 11:34 AM (GMT -6)   
Hi Smarty,
You need to find out if the source of your constipation is the colon, the rectum, pelvic floor muscles which control the rectum, or some systemic issue such as low thyroid function. A Sitzmark transit test will show if you have colonic intertia (meaning the colon isn't working properly). A defecogram test will show if you have problems with the way the pelvic floor muscles work or if you have pelvic organs which are prolapsing (falling); this can trap stool. Anorectal manometry, I think, can show function or dysfunction of nerves in the rectum. A pudental nerve terminal latency test can show nerve issues with the pudental nerve. This is a nerve of the pelvis that has to do with going to the bathroom. I am not a doctor, but got in severe trouble with surgery done based on what turned out to be a mis-diagnosis. Only one of these tests was given to me; I did not know of the others at the time. It is very important to have the FULL battery of tests before making a surgical decision as there are many reasons one can be constipated. From the research I've done and the contacts I've made, I found a great article. Go on Google and type in Physiological Tests of the Colon, Rectum, and Anus. A very informative article will appear written by a knowledgeable colorectal surgeon at George Washington University. The article costs 99 cents and is worth every penny. Good Luck, Rosemary
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