Hi my name is Traci, I am 22 and a full time student in Florida. I am a proud mom, but a single one. My family is ultra supportive and more helpful than I could ever wish. I have been reading you'als forms for months now and I finally feel comfortable enough to talk.
I have had chronic GI problems since birth. I have had everything from bypass due to such severe impaction's to weeks without any bowel movement. I have tried every medication on the market. From herbal supplements to GoLytely. I finally found a DR who referred me to a colon/rectal surgeon. I underwent a sitz marker test, failed; defography, completely failed...absolutely nothing moved during the study and then still didn't move for about a week; I had EMG monomitry, failed...there was no sensation what-so-ever; and I had the balloon manomitry, failed...they actually inflated the balloon to full to find any sensation that it popped not once but three times and finally they decided that my bowel just exceeded the threshold for the balloon. I also had a barium enema study, they found that the bowel itself was okay and that there was no obstructions.
That DR decided that I needed to try biofeedback, this was because at the time I was having difficulty's with my insurance company. He also said that when/if the biofeedback failed he would need to perform a coloectomy. I went back to my DR and he referred me to the most WONDERFUL DR in the CC in Weston, FL.
I went for my appointment assuming he would agree with the first surgeon but to my surprise he completely disagreed. He and his staff were wonderful. He said that biofeedback, for my condition, was a complete waste of time. He said that because of my specific bowel troubles he believes that my problem is a colon/rectal/anal emptying disorder. He said until they invent a "pass-maker" for my anus. He said that because even drinking the GoLytley only works on occasion he wants to perform a colostomy.
I am supposed to sech. it for the start of Dec. but I have great reservations. I have looked online and found photos but they all seem to be the worst of situations. I am young and active and I don't want this colostomy to slow me down. I have never truly gotten to experience what most people my age do. Dating, romance, tighter fight clothing. I have worked very hard to lose weight and finally at a good point that I feel comfortable with who I am. I am so worried that having this colostomy will be a HUGE red flag to any perceptive date. Will I be forced to wear sweat pants and baggy clothing to hide it? I live in FL, its HOT, I mean its the middle of OCT and its in the 90's, I like tank tops and such I don't want to have to wear baggy shirts.
The surgeon said that if this works Great, if it doesn't then I can reverse it or have the coloectmy. Any advise is so hugely appreciated.