If You Are Having or Have an Ostomy, You Should View This

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Veteran Member

Date Joined Feb 2003
Total Posts : 1251
   Posted 10/17/2009 4:24 PM (GMT -6)   
All ostomates and potentials ostomates, need to view the following:


It's a video about ostomies put out by the UOAA (United Ostomates Assoc of America). It's esp important to me cos it includes several friends of mine - Lee Ann Barcus (the lady who is featured doing karate - one day we WILL get to meet up :) ) is a long time friend of mine, I also know Aileen Gould, Jason Cesari, Linda and Ken Auckett (pres of the UOAA), Kristen Knipp and Brenda Elsagher - Brenda is a comedienne and fabulous author and has sent me a copy of her book "If the Battle is Over, Why Am I Still In Uniform?'. She subsequently published a book "I'd Like to Buy A Bowel Please". All of them appear in the video.

The UOAA is trying to get the word out about ostomies. I totally applaud them.
Ileostomy for 33 years due to UC

Moderator of the Ostomy and Psoriasis Forums


I'm not a complete idiot - some parts of me are missing!

Veteran Member

Date Joined Jan 2006
Total Posts : 768
   Posted 10/17/2009 11:02 PM (GMT -6)   
Nice cheery film. Good for those people. I Hope I get there someday.

I'm still in struggle mode. Bitter and grumpy. Went to the ET nurse yesterday she looked young. She was very nice and tried to help me. She put some stuff on a stick and tried to burn on one of the huge bumps. Yeow!!!! I didn't cry but felt like it. I winced while she was rubbing the stuff on the bump and she asked me if it hurt. Wish I could have come up with funny answer, I was speechless at such a dumb question. Miss the book says, put on new flange and bag. It started leaking this afternoon. I haven't worked out or sweated. Did grocery shop. Could that have done it? Try to keep my mind happy with blessings.

Brenda the comedienne was funny. Where can you buy her books?
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 10/18/2009 3:19 PM (GMT -6)   
Excellent video, Shaz! Thanks for sharing it with us.

:-) Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 10/19/2009 9:17 AM (GMT -6)   
Shaz--love it!

As a volunteer at my hospital for patients having had ostomies, I am always referring them to the UOAA website, but will now send them to this page:) Thanks!

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 10/19/2009 9:10 PM (GMT -6)   
That was GREAT! Thanks for sharing that with us Shaz! I'm so proud of those people. And it makes me feel proud of how far i've come too.
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."

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