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crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 10/19/2009 11:21 AM (GMT -7)   
Hi I noticed in one of your answers to a post that you are a voulnteer at a hospital for people with ostomies how did you go about this? i have thought quite alot about doing this as at the hospital i'm with the stoma nurses don't work at weekends, from expereince of being in hossy on a  weekend with a new stoma  i could really of done with someone to talk to who had an ostomy. thanks in advance Bev x
Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal sheduled for Nov09 Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid, Back on citalopram 40mg (for Anxiety.)


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/20/2009 6:30 PM (GMT -7)   
I thought about it for a long time, too!! One day I just decided I wasn't going to think about it and DO IT :-)

My hospital has a volunteer services department that i had to go though. There were some training classes I had to attend and then I worked with another volunteer for a day. I am there during the week...stoma nurses are there when I am...I talk to patients and try to focus on seeing the ones with new ostomies. My hopes are to help one person each day I am there. I don't help with the technical stuff, but more of the questions on daily life, what ifs and diet. The funny thing is that some don't believe I have an ostomy and I've even had to convince them I do!!! That usually gives them hope tongue

I have found it so rewarding and hope to be able to do it for a long time. Let me know how it turns out:)

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 10/22/2009 11:54 AM (GMT -7)   
Hi, Thanks so much for the info, yep like yourself iam going to do it! i have an appointment at the hospital on 2nd nov and will  go and enquire about voluntree work in that area.The stoma nurses do a fantastic job but i feel that as they are doing this day in day out they forget to mention certain things and when you come out of hossy and  say have leaks your like "they never told me this would happen!"  i would of like to have been a bit more educated before i came out of hossy. thanks again i will let you know how it goes. Bev x

Diagnosed with crohn's at 13 now 42
resection, right hemi 1993 In remmision from 93 till last sept with no meds or docs
2 resections small bowel  and fistula jan 09 and given temp stoma.  reversal sheduled for Nov09 Meds:Pentasa 500mg 3x day,  B12 shots, every 3 months, iron syrup,loperimide,folic acid, Back on citalopram 40mg (for Anxiety.)

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