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glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 10/20/2009 7:04 PM (GMT -7)   
Does anyone have a hard time coping with all thats happened to them? I'm not depressed or anything like that but I find myself thinking about my surgeries and at times I am just mystified that this has all happened to me...you know? Maybe I'm just weird...
 
Anyone else find themselves thinking? I thought about trying to write it all down or turning it into a book or something...we'll see how much patience I have.
 
Have a good night!
 
Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006
 
Proctocolectomy and J-pouch formed with loop ileostomy April 2009
Reversal June 2009
 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 10/20/2009 7:58 PM (GMT -7)   
yeah i do
the other day, i was emptying my bag, and i thought, god i never thought iw ould have a poop bag at 32! (ugh im old)
I wasnt depressed about it or anything, just thinking, that it was not somethign i expected. And i think to myself, i have been through so many things that i never ever thought i would do.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


andorable
Veteran Member


Date Joined Jun 2005
Total Posts : 981
   Posted 10/20/2009 8:39 PM (GMT -7)   
Hi Holly,
I feel exactly the same as you, I dont understand why I do either because for me it was an ileostomy or I wasnt going to live. I am currently seeing a psychologist to work through it amongst other things in my life that are getting me down. I was also thinking of getting my medical records and piecing it all together into a book to be able to help others that have been through lots of surgeries like I have. I see you have had a reversal. I wish I could have but since mine was crohns/ colitis my surgeon and GI both said it was too risky so mine is permanent. Also your last surgery wasnt that long ago and my last one being the proctocolectomy done on july 30 is not that long ago either, I think what we are going through is completely normal and we are definately not alone. Things are still early days for us and will get better Im sure. Take care and stay in touch
Hope u feel better real soon

Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 10/20/2009 9:11 PM (GMT -7)   
Hey I feel the same way!! I can hardly believe the way my life is going at the moment.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/21/2009 4:01 AM (GMT -7)   
This has been a VERY DIFFICULT year for you medically...hang in there, once you've gone a little further in your recovery, it won't weigh so much on your mind. A journal sounds like a great idea, too!

I used to wonder why I lived so long in pain, why didn't I do it sooner(I've had my ileo 10 years and it's been permanent for 1.5 years)? Now I just think "I wouldn't have been able to do that before my ileo"...our minds are amazing!

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5696
   Posted 10/21/2009 6:07 AM (GMT -7)   
Yes, but the playback will diminish with time.

If you find yourself replaying the videos in your mind to the point of tears or anxiety it could be PTSD (post traumatic stress disorder). Don't be embarrassed to seek medical care if it goes this direction; many of us (myself included) needed post surgery mental therapy!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 10/21/2009 3:27 PM (GMT -7)   
Wow! I feel so much better knowing that you are all out there and are going through or have gone through simliar experiences.

Thank you so much!
Holly
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006
 
Proctocolectomy and J-pouch formed with loop ileostomy April 2009
Reversal June 2009
 
 


SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 10/21/2009 3:36 PM (GMT -7)   
Im not embarrassed at all to be seeing a therapist. Im 31, and yep Ive had some crazy stuff happen to me.

Pitz
Regular Member


Date Joined Jul 2007
Total Posts : 84
   Posted 10/21/2009 4:18 PM (GMT -7)   
I feel the same way. Sometimes I feel like I've got an IV bag hanging off me. I know it saved my life, but I still have those "Why me?" days. I'm also job hunting, so add that stress and I do have some down days.

Ulcerative Pancolitis (dx'd 6/2002)
Colectomy w/ileostomy 6/2/09; iron infusions; Aranesp injection every week for anemia;
Remicade; Pentasa; 6-MP; Prednisone; Lialda; Asacol
various meds for other conditions


glaciergrl
Regular Member


Date Joined Apr 2005
Total Posts : 269
   Posted 10/21/2009 5:17 PM (GMT -7)   
Good luck with the job hunting. I had an interview with ileo and was praying to GOD it would be quite. Must've been lucky, I got the job. You'll find something!
25yrs old/ teacher/ Wisconsin

Diagnosed UC Pancolitis in Nov 2004
Diagnosed PSC in Oct 2006
 
Proctocolectomy and J-pouch formed with loop ileostomy April 2009
Reversal June 2009
 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 10/21/2009 10:30 PM (GMT -7)   
Holly - It's easy to fall into a semi-depression when I think about all of my health trials. From personal experience, I never expected that I would endure so many surgeries, recoveries, difficulties, and pain. However, I try to stay positive. I am alive! I have a loving and supportive family! I live in a country where I can have access to doctors and surgeons! My condition is not fatal! Ya da...Ya da....

No matter how bad I feel, I try to find a reason to smile and get on with my day. For me, it helps.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot

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