A wish come true

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ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 10/22/2009 11:07 AM (GMT -7)   
Earlier this year I was frantically searching for information regarding Ostomies, JPouches, recovery time, pouchitis, hernias ... and was getting quite overwhelmed. You see, I have suffered with Ulcerative Colitis for over 12 years and had been on and off steroids, immuran, asacol, humira, remicade and it took a toll on my body. I was developing osteopenia, my eye sight was deteriorating, I was completely sluggish. At the end of February my wife and I found out that she was pregnant, all of the doctors told us that she wouldn't be able to get pregnant and if she did it would be a tough pregnancy full of complications. I started to envision life with my unborn child and was saddened by the fact that i wouldn't be able to run, play, swim and keep up!!

I decided to undergo surgery.

I went into the surgery with an abundance of knowledge about the procedures and every possible complication that could occur. What websites and journals do not ready you for is the actual feeling. I felt like I was hit by a truck. I woke up out of the first surgery with an ostomy and I was extremely depressed and could not see further than the current day. I was hospitalized twice due to dehydration and an infection. Visited the doctors office and stoma nurse religiously. Thankfully, with the help of my family and friends I was able to get past that point and ready myself for the second surgery.

After the second surgery i felt like a baby learning to potty train. Dealing with leaks, and possible pouchitis. Doing kegals while watching tv ... it finally got me to the point where I am today. I am by no means perfect yet, and I know I have a LONG way to go but I could never envision myself doing as much as I do today, earlier this year.

My wife went into labor earlier last week and we now have a beautiful baby girl :) I helped my wife labor for over 30 hours without a bathroom break. I was able to be there to support her. My baby girls first cry made me fall in love all over again. I can now see myself running, swimming, keeping up and getting old with my family.

I want to thank everyone in this forum, the JPouch forums and on twitter for the support. You guys are truly awesome and I don't think I could have done it without you. I am forever indebted and am here to answer any questions regarding the surgery.

God is great and the saying is absolutely true: "This too shall pass"

Believe.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/22/2009 4:32 PM (GMT -7)   
Wow, what an awesome testimony! You made me cry tears of joy. I'm so happy for you. Congratulations on your new, healthy life and new baby girl! :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 10/22/2009 4:38 PM (GMT -7)   
UCfree-
I have been thinking about you- I knew that your wife was due sometime in Oct. I am so happy for you- this is a great time. It is awesome that you can experience it UC free !!

I am also glad to hear that you are getting better everyday.

I am having my reversal tomorrow at CC with Weiss. Finally!!! So my final journey with UC begins.
I wish you the very best and I have to thank YOU for helping ME through some tough times earlier this year.
Jackie, 44
Pancolitis, DX October 06
Lexapro, Synthroid, Protonix- NO MORE PRED!!!

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps
Step 2- June 23rd
Step 3- REVERSAL:::::: October 23rd -YEAH!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 10/22/2009 5:17 PM (GMT -7)   
YAY!!! Im so glad things are going so well for you!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 10/22/2009 6:43 PM (GMT -7)   
JBlue!!!!!! You have to let me come visit you sometime at the hospital. I wish you all the best and tell Dr Weiss I said hi :)
He rocks and honestly, I would not have chosen anyone else to perform my surgery even if I could do it all over again.

Good luck and God bless. Let me know if it's ok for me to visit :)

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 10/23/2009 2:40 PM (GMT -7)   
Jackie,
I'm praying that your surgery went well today.
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.


SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 10/23/2009 3:31 PM (GMT -7)   
Wow, Thanks for that story. I had my colon removed under emergency settings, so my JPouch is going to be a 3 parter. My second part (Removal of the rectum, and j-pouch creation) is scheduled for December 11th. Not sure when the 3rd part (the take down) will be, but Im hoping for some time by April 2010.

I do have a couple questions. How long did it take after the take down before you were comfortable leaving your house? Maybe a better question is How long until you werent affraid of having an accident?

Next question is How long after each surgery until you returned to work? Since I was so emaciated prior to the colon removal it took a full 2 months before I returned to work after. Im guessing if I was in good health, the second and third step should follow what is typical for most people.

Thanks,
John

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 10/23/2009 7:36 PM (GMT -7)   
First thing is ... everyone is different. Just listen to your body, it will tell you when, where, how ... I asked the same questions when I was going thru my battles with the surgeries, however, I seemed to progress a bit faster. Maybe it was the strive to get better for my daughters delivery, or maybe it was what the docs said ... I was young and healthy. I think it all has to do with the mind, you believe and it will happen. I've heard of much elderly people having these surgeries and coming out better than some of the younger folk.

I was out and about very soon after my second surgery. It was nowhere as tough as the first one. I did have some urgencies and a little bit of leakage. I took lomotil, immodium and put on a BSure leakage pad and head out of the house. Trust me, it does wonders to get out and about. Boosts your self confidence. Obviously I was exhausted after the day was over and slept like a log at night, but the first week at night was tough. Take the immodium and sleep, it really does help. Also, make sure you take some metamucil, I still take that sometimes.

As for returning to work, I don't think I am back to my full potential yet .. but I was back about 2 months after my second surgery. I took breaks, sometimes worked part time, and eased it back into my schedule. If your employer lets you do that .. take advantage of it!!!!

Good luck and feel free to contact me if you have any more questions.

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 10/23/2009 8:02 PM (GMT -7)   
Ucfree-

Congratulations on your new addition. There is something about the sweet joy of having a new baby that puts everything in perspective. Best Wishes to you and your wife.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


Nutz
Regular Member


Date Joined Jul 2009
Total Posts : 149
   Posted 10/24/2009 9:39 AM (GMT -7)   
Hi UCFree, I am so happy for you! What a great story! I had my first surgery on Oct 5 and am awaiting the "takedown" surgery. Thank goodness I did not have any complications so I am praying to have it down as soon as possible. My dr said 6 weeks at the earliest. I know there are some tests to undergo to make sure that I have healed thoroughly inside. Do you know what the tests are and how much before the takedown they do them? I forgot to as my doc.

Enjoy every minute with your baby girl. I have 2 girls and they grow so fast- 4 and 2! I can't wait to get healthy so I can be the mom that they need and deserve:)
Darlene "Nutz"
Diagnosed with Ulcerative Proctitis 1999, changed to Ulcerative Colitis 2002.  J pouch surgery Oct 5, 2009


Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 10/24/2009 9:30 PM (GMT -7)   
That's a beautiful story. Thank you for sharing it for everyone. I know it will help others who are in this situation too.
Congratulations on your new baby girl. Take lots of pictures and write everything down for her. It doesn't seem like you could forget anything right now, but you will. Keep a journal.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Trigirl
Veteran Member


Date Joined Jan 2006
Total Posts : 768
   Posted 10/25/2009 9:32 PM (GMT -7)   
Thanks for the encouraging words. It is truly great to read.

Babies are wonderful!! Enjoy!!

And may you continue in health and happiness.
This heights by great men reached and kept, were not obtained by sudden flight, but they while their companions slept, were toiling upward in the night.
H.W. Longfellow
Thyroid cancer removed 1988
Stomach problems finally figured out 2001 Crohn's/Colitus
Tried every drug without much success
Colon/rectal cancer removed Aug 2009
Trying


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 10/26/2009 3:21 AM (GMT -7)   
Awesome for you!! Congrats:)
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